《中国康复理论与实践》

《中国康复理论与实践》 ›› 2015, Vol. 21 ›› Issue (07): 799-803.

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中文版脑性瘫痪儿童生活质量问卷的信度

郭金颖 1，史惟 2，周美琴 3，王素娟 2   

  • 收稿日期:1900-01-01 修回日期:1900-01-01 出版日期:2015-07-25 发布日期:2015-07-25

Reliability of Chinese-version of Cerebral Palsy Quality of Life Questionnaire for Children

GUO Jin-ying1, SHI Wei2, ZHOU Mei-qin3, WANG Su-juan2   

  1. 1. Zhejiang Dongyang City Hospital of Traditional Chinese Medicine, Jinhua, Zhejiang 322100, China; 2. Rehabilitation Center, Children's Hospital of Fudan University, Shanghai 201102, China; 3. Shanghai Pudong Special Education School, Shanghai 200135, China
  • Received:1900-01-01 Revised:1900-01-01 Published:2015-07-25 Online:2015-07-25

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被引次数

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摘要： 目的 确定中文版脑瘫儿童生活质量问卷(CPQOL)的不同自评者间的信度。方法 康复医疗机构中 21例脑瘫儿童的两名家长分别进行自评，1家特殊教育学校18名脑瘫儿童及其家长分别采用CPQOL中文版进行自评。计算家长间、家长与儿童间的等级间相关系数(ICC)，分析家长与儿童CPQOL各项分值间的差异。结果 CPQOL各分区家长间ICC=0.49~0.86，其中功能、获得服务分区信度极好，参与能力与躯体健康、疼痛与残障的影响分区信度中等。儿童与家长间的信度相对较低(ICC=0.29~0.73)，其中功能、参与能力与躯体健康的信度良好，其余 3个分区均较低，社会福祉和受容度分区的信度不理想。儿童自评分值均高于家长，其中参与能力与躯体健康分区分值有显著性差异(P<0.05)。结论 中文版CPQOL家长问卷信度尚可，尤其在功能和获得服务分区；家长和儿童自评的信度中等，社会福祉和受容度分区的信度较低。

关键词: 脑性瘫痪, 生活质量, 脑瘫儿童生活质量问卷, 信度

Abstract: Objective To determine the reliability of Chinese- version of Cerebral Palsy Quality of Life Questionnaire for Children (CPQOL) between self-raters. Methods Family members of 21 children with cerebral palsy from rehabilitation centers or hospitals, 2 members of the same one, and 18 teenagers with cerebral palsy from a special school along with one of their parents, answered CPQOL. The intraclass correlation coefficient (ICC) between family members, as well as teenagers and their parents were calculated, and the differences of scores of each dimension between parents and teenagers were compared. Results The reliability between family members was acceptable (ICC=0.49-0.86) in all the dimension of CPQOL, which was good in the function and acquired service dimensions, and was moderate in participation and body health dimensions. The reliability was weaker between parents and teenagers (ICC=0.29-0.73), which was acceptable in the dimensions of function, and participation and body health; and very low in the dimension of welfare and acceptance. The teenagers often rated better than their parents did, especially in the dimension of participation and body health (P<0.05). Conclusion The reliability of CPQOL is acceptable when rated by family members of cerebral palsy children, especially in the dimensions of function and service acquired. It is weaker between parents and children, especially in the dimension of welfare and acceptance.

Key words: cerebral palsy, quality of life, Cerebral Palsy Quality of Life Questionnaire for Children, reliability