2016年至2025年孤独症谱系障碍儿童父母心理健康研究的文献计量分析

doi:10.3969/j.issn.1006-9771.2025.07.006

《中国康复理论与实践》 ›› 2025, Vol. 31 ›› Issue (7): 790-801.doi: 10.3969/j.issn.1006-9771.2025.07.006

2016年至2025年孤独症谱系障碍儿童父母心理健康研究的文献计量分析

宋竺蔓¹, 刘娜², 刘杨³, 丁雪梅¹, 张晓丽¹()

1.滨州医学院护理学院(老年医学院)，山东烟台市 264003
2.德州职业技术学院，山东德州市 253034
3.滨州医学院特殊教育与康复学院，山东烟台市 264003

收稿日期:2025-05-12 修回日期:2025-05-26 出版日期:2025-07-25 发布日期:2025-07-30
通讯作者: 张晓丽(1979-)，女，汉族，山东荣成市人，硕士，教授，硕士研究生导师，主要研究方向：母婴与儿童护理、康复护理、护理教育与教师发展、公共卫生管理。E-mail： zxl7901@163.com
作者简介:宋竺蔓(2001-)，女，汉族，山东烟台市人，硕士研究生，主要研究方向：母婴与儿童护理。
基金资助:
山东省社会科学规划研究项目(23CSHJ01)

Mental health in parents of children with autism spectrum disorder: a bibliometric analysis from 2016 to 2025

SONG Zhuman¹, LIU Na², LIU Yang³, DING Xuemei¹, ZHANG Xiaoli¹()

1. School of Nursing (School of Geriatrics), Binzhou Medical University, Yantai, Shandong 264003, China
2. Dezhou Polytechnic College, Dezhou, Shandong 253034, China
3. School of Special Education and Rehabilitation, Binzhou Medical University, Yantai, Shandong 264003, China

Received:2025-05-12 Revised:2025-05-26 Published:2025-07-25 Online:2025-07-30
Contact: ZHANG Xiaoli, E-mail: zxl7901@163.com
Supported by:
Shandong Social Sciences Planning Research Project(23CSHJ01)

摘要/Abstract

摘要：

目的分析孤独症谱系障碍(ASD)儿童父母心理健康领域的研究现状、热点及前沿趋势。

方法检索2016年1月1日至2025年3月26日中国知网和Web of Science核心合集数据库中相关文献，采用CiteSpace 6.4.R1高级版对发文趋势，国家、作者、机构合作网络，关键词和突现词进行文献计量分析。

结果共纳入中文文献216篇，英文文献1 258篇。英文文献发文量年均增长20.1%，美国、荷兰和中国发文量领先；中文文献发文量于2023年后下降。中、英文文献关键词分别形成9个和8个聚类，整合为4个核心领域：心理健康与共病障碍、神经发育与行为障碍、教育与社会功能、研究方法与干预。中文文献多聚焦家庭-社会支持体系优化和干预模式；英文文献侧重于神经发育共病机制和循证实践。

结论 ASD儿童父母心理健康研究呈跨学科融合趋势，中、英文文献研究重点分化明显。

关键词: 孤独症谱系障碍, 父母, 心理健康, 文献计量学

Abstract:

Objective To analyze the research status, hotspots and trends for the mental health of parents of children with autism spectrum disorder (ASD).

Methods Literatures from January 1st, 2016 to March 26th, 2025 in CNKI and Web of Science core databases were retrieved. CiteSpace 6.4.R1 advanced version was used for bibliometric analysis in terms of publication trends, countries/authors/institutions collaboration networks, keywords and bursting words.

Results A total of 216 Chinese and 1 258 English articles were included. The annual publication volume increased in English articles by an average of 20.1% a year, and the United States, Netherlands and China were the countries with the most publication. However, Chinese publication volume decreased after 2023. The keywords formed nine and eight clusters in Chinese and English literatures, respectively, which were integrated into four core areas: mental health and comorbid disorders, neurodevelopmental and behavioral disorders, education and social function, and research methods and intervention. Chinese researches focused on optimizing the family-social support system and intervention models, while English researches focused on the mechanism of neurodevelopmental comorbidities and evidence-based practice.

Conclusion The researches on the mental health of parents of children with ASD tend to interdisciplinary integration. There is a significant divergence in the main topics between Chinese and English researches.

Key words: autism spectrum disorder, parents, mental health, bibliometrics

中图分类号:

R749.94

宋竺蔓, 刘娜, 刘杨, 丁雪梅, 张晓丽. 2016年至2025年孤独症谱系障碍儿童父母心理健康研究的文献计量分析[J]. 《中国康复理论与实践》, 2025, 31(7): 790-801.

SONG Zhuman, LIU Na, LIU Yang, DING Xuemei, ZHANG Xiaoli. Mental health in parents of children with autism spectrum disorder: a bibliometric analysis from 2016 to 2025[J]. Chinese Journal of Rehabilitation Theory and Practice, 2025, 31(7): 790-801.

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参考文献 43

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国家	频次/n	中心性
美国	472	0.00
荷兰	236	0.00
中国	188	0.05
德国	156	0.01
加拿大	151	0.03
澳大利亚	123	0.03
意大利	105	0.00
西班牙	84	0.01
日本	76	0.00
丹麦	75	0.05

中文作者	发文量/n	英文作者	发文量/n
卜凡	2	Heyman Isobel	14
白洁	2	Georgina M Jackson	13
雷秀雅	2	Hartmann Andreas	12
祖燕飞	2	Martino Davide	11
郑剑虹	2	Pieter J Hoekstra	11

中文机构	发文量/n	英文机构	发文量/n	中心性
华东师范大学	8	伦敦大学学院	46	0.10
西南大学	7	格罗宁根大学	40	0.06
华中师范大学	7	牛津大学	28	0.07
广州大学	7	卡罗林斯卡学院	27	0.04
重庆师范大学	6	伦敦国王学院	20	0.02

分类	编号	大小	S值	主要关键词
心理健康与共病障碍	中文#0	23	0.869	抑郁、焦虑、育儿压力、教养压力、歧视知觉
	中文#1	22	0.875	生活质量、心理健康、养育倦怠、问卷编制、社会支持
	中文#5	16	0.751	心理韧性、特殊儿童家长、心理弹性、亲子关系、幸福感
	英文#1	23	0.929	quality of life, Turner syndrome, patient-reported outcomes, health services, multiple sclerosis
	英文#2	22	0.963	major depressive disorder, affective disorders, bipolar disorder, Tourette syndrome, psychotic disorders
	英文#4	20	0.859	mental health, Tourette syndrome, world trade center, 9/11 disaster, hearing loss
神经发育与行为障碍	英文#0	29	0.983	Tourette syndrome, attention-deficit/hyperactivity disorder, premonitory urge, tics, structural covariance networks
神经发育与行为障碍	英文#5	13	0.984	Alzheimer's disease, dementia, memory, cognitive function, schizophrenia
教育与社会功能	中文#2	21	0.898	残疾儿童、智力残疾、特殊儿童、质性研究、孤独症谱系障碍
	中文#3	18	0.780	亲职教育、心理干预、儿童、学龄自闭症儿童家长、情绪表达
	中文#4	16	0.914	特殊教育、父母、瑞文智能、田野调查、情绪弹性
	中文#7	7	0.882	母亲、应对方式、心理成长、心理行为、心理体验
	中文#8	7	0.960	融合教育、特殊需要儿童、幼小衔接、家庭支持、亲子
	英文#7	10	0.975	social integration, social support, academic adjustment, open science, transfer students
研究方法与干预	中文#6	9	0.926	影响机制、生命意义、养育体验、学校适应、混合研究
	英文#3	22	0.916	systematic review, children and young people, tic disorders, functional movement disorders, cohort study
	英文#6	10	0.992	internet-based intervention, Takotsubo syndrome, anxiety, stress, coping

2016年至2025年孤独症谱系障碍儿童父母心理健康研究的文献计量分析

Mental health in parents of children with autism spectrum disorder: a bibliometric analysis from 2016 to 2025

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中文关键词	频数/n	中心性	英文关键词	频数/n	中心性
孤独症	57	0.20	Tourette syndrome	120	0.27
亲职压力	39	0.30	mental health	64	0.19
父母	39	0.20	health-related quality of life	50	0.11
心理健康	28	0.05	Turner syndrome	29	0.03
心理弹性	26	0.10	cognitive biases	21	0.09
社会支持	22	0.10	systematic review	19	0.12
儿童	19	0.17	autism spectrum disorder	17	0.03
社交焦虑	15	0.28	mental illness	17	0.04
影响因素	14	0.40	boom-bust pain cycle	16	0.01
应对方式	13	0.07	affective disorders	14	0.05

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