脊髓灰质炎后综合征患者的肌力和耐力有限,同时会新发生疲劳和无力,因此在生活中必须节省使用体能。患者可以通过调整生活方式来保存体能,需结合多学科支持来减轻症状及维持功能。患者实现保存体能需要建立使用体能的详细目录、咨询医生、评估及改善睡眠、控制体质量、空间及物品条理化、简化日常工作和家务、寻求帮助、计划休息时间、注意天气变化、识别抑郁和孤独的征象。在居家事务、烹饪、清洁、办公、户外活动中,患者要以尽可能使用保存体能的生活方式进行。
Post-polio syndrome patients have limited muscle strength and endurance, and new fatigue and weakness appears at the same time, so it is necessary to save physical fitness in life. The patients are able to save their physical fitness by adjusting their lifestyle, and multidisciplinary support should be combined to alleviate symptoms and maintain function. Saving physical fitness requires the patients to achieve the following aspects, including setting up inventory of physical fitness using, consulting doctors, evaluating and improving sleep quality, weight-control, streamlining the living space, simplifying the daily work and housework, asking for help, planning rest time, attention to the weather changes, and identifying the sign of depression and isolation, etc. In family affairs such as cooking, cleaning, office, and outdoor activities, they should use the life-preserving lifestyle as much as possible.
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