《中国康复理论与实践》

《中国康复理论与实践》

• 残疾调查与统计 • 上一篇    下一篇

我国残疾儿童家庭生活质量与家庭支持现状①

胡晓毅   

  1. 北京师范大学教育学部特殊教育系，北京市100875。
  • 出版日期:2016-10-25 发布日期:2016-12-05

Family Quality of Life and Family Support of Children with Disabilities in China

HU Xiao-yi   

  1. Department of Special Education, Faulty of Education, Beijing Normal University, Beijing 100875, China
  • Published:2016-10-25 Online:2016-12-05

PDF (PC)

摘要： 目的探究我国残疾儿童家庭生活质量和家庭支持的现状，以及二者之间的关系。方法采用中文版家庭生活质量评估量表以及家庭支持量表对我国3198 名残疾儿童的家庭进行问卷调查。结果我国残疾儿童家庭生活质量满意度为(3.48±0.75)，处于中等水平。残疾儿童家庭对所获家庭支持的感受度较低(1.68±0.57)。家庭生活质量与专业支持的相关性最高(r=0.67, P<0.001)，其次与亲属的支持、社会组织的支持、朋友的支持以及配偶的支持都呈现中等相关(r=0.36~0.55, P<0.01)。结论我国仍缺乏针对残疾儿童家庭为中心的家庭支持服务项目，而这些家庭支持服务能显著提升残疾儿童家庭的整体生活质量。需要切实组织好能切实支援帮助的家庭互助组织以及社会公益服务，提升家庭经济补助，以此进一步提升我国残疾儿童家庭生活质量。

关键词: 家庭生活质量, 家庭支持, 残疾儿童

Abstract: Objective To explore the family quality of life and family support status of children with disabilities, as well as the relationship between them in China. Methods A total of 3198 families with children with disabilities were surveyed with Chinese Version of Family Quality of Life Scale and Family Support Scale. Results The satisfaction of family quality of life was (3.48±0.75), in the middle level. The support degree was (1.68±0.57), in the low level. The family quality of life highly correlated with professional support (r=0.67, P<0.001), and also correlated with support from relatives, social organizations, friends and spouse (r=0.36~0.55, P<0.01). Conclusion China is lacking of family-centered support services to children with disabilities, that can significantly predict family quality of life. It is needed to organize the family-to-family help organizations and social welfare services, improve the social finance allowance, with the overarching purpose to improve the family quality of life for families with children with disabilities in China.

Key words: family quality of life, family support, children with disabilities