[1] 中国康复医学会儿童康复专业委员会,中国残疾人康复协会小儿脑性瘫痪康复专业委员会,《中国脑性瘫痪康复指南》编委会. 中国脑性瘫痪康复指南(2015):第一部分[J]. 中国康复医学杂志, 2015, 30(7): 747-754. [2] 胡亚美,姜载芳. 诸福棠实用儿科学[M]. 8版. 北京:人民卫生出版社, 2015. [3] Rosenbaum P. Family and quality of life: key elements in intervention in children with cerebral palsy [J]. Dev Med Child Neurol, 2011, 53(4): 68-70. [4] Lowes L, Clark TS, Noritz G. Factors associated with caregiver experience in families with a child with cerebral palsy [J]. J Pediatr Rehabil Med, 2016, 9(1): 65-72. [5] 郭岚敏,肖凤鸣,姜志梅,等. 脑性瘫痪儿童父母心理健康状况与其人格特征的关系[J]. 中国康复理论与实践, 2014, 20(11): 1068-1070. [6] 周彩峰,周志南,谢俊房,等. 脑性瘫痪患儿父母积极体验与家庭亲密度适应性调查及相关性研究[J]. 中国全科医学, 2015, 18(8): 924-927. [7] 中华医学会儿科学分会神经学组. 小儿脑性瘫痪的定义、诊断条件及分型[J]. 中华儿科杂志, 2005, 43(4): 262. [8] 张莹,魏珉. 中文版家庭管理测量量表的信效度研究[J]. 中国实用护理杂志, 2009, 25(14): 19-22. [9] Yu XN, Zhang JX. Factor analysis and psychometric evaluation of the Connor Davidson resilience scale (CD-RISC) with Chinese people [J]. Soc Behav Personality, 2007, 35(1): 19-30. [10] 汪向东,王希林,马弘. 心理卫生评定量表手册[M]. 增订版. 北京:中国心理卫生杂志社, 1999. [11] 范俊强,周广涛. 95后大学生心理弹性现状及保护性因素研究[J]. 中国卫生产业, 2016(7): 27-29. [12] 叶增杰,管惠捷,全小明,等. 肿瘤患儿父母心理弹性及其影响因素的研究[J]. 中国实用护理杂志, 2014, 30(24): 55-58. [13] 孙玉倩,孙秉赋,王凤玲,等. 恶性肿瘤患儿家庭管理方式及影响因素调查研究[J]. 中国全科医学, 2013, 16(3C): 1016-1019. [14] Kim DH, Im YJ. The influence of family management style on psychosocial problems of childhood cancer survivors in Korea [J]. Eur J Oncol Nurs, 2015, 19(2): 107-112. [15] Kim I, Ekas VN, Hock R. Associations between child behavior problems, family management, and depressive sympotoms for mothers of children with autism spectrum disorder [J]. Res Autism Spectr Disord, 2016, 26: 80-90. [16] Ichikawa CR, Bousso RS, Misko MD, et al. Cultural adaptation of the Family Management Measure among families of children and adolescents with chronic diseases [J]. Rev Lat Am Enfermagem, 2014, 22(1): 115-122. [17] 焦燕琴,万卫红,唐浪娟. 脑瘫患儿家庭主要照顾者负担及影响因素分析[J]. 护理管理杂志, 2014, 14(12): 856-858. [18] 武霞,杨茜茜,陈悦. 脑瘫康复患儿主要照顾者的照顾体验[J]. 泰山医学院学报, 2016, 37(1): 36-39. [19] 李晓捷. 中国脑性瘫痪康复的现状、挑战及发展策略[J]. 中国康复医学杂志, 2016, 31(1): 6-8. [20] 李红英,张跃,汤健,等. 脑瘫患儿家长焦虑和抑郁状况及其影响因素的研究[J]. 中华物理医学与康复杂志, 2014, 36(3): 174-175. [21] Majnemer A, Shevell M, Law M. Indicators of distress in families of children with cerebral palsy [J]. Disabil Rehabil, 2012, 34(14): 1202-1207. [22] Cuijpers P, Weitz E, Karyotaki E, et al. The effects of psychological treatment of maternal depression on children and parental functioning: a meta-analysis [J]. Eur Child Adolesc Psychiatry, 2015, 24(2): 237-245. [23] 陈彬. 脑瘫患儿父母不良情绪对患儿康复的影响[J]. 中国实用神经疾病杂志, 2012, 15(8): 63-64. [24] Rosenberg AR, Wolfe J, Bradford MC, et al. Resilience and psychosocial outcomes in parents of children with cancer [J]. Pediatr Blood Cancer, 2014, 61(3): 552-557. [25] 付芳,王英,顾秀萍. 慢性病患儿家属心理弹性与家庭功能的相关性研究[J]. 护理研究, 2013, 27(7): 2073-2075. [26] 周迎春. 哮喘患儿母亲主管幸福感与焦虑抑郁状况分析[J]. 中国儿童保健杂志, 2010, 18(1): 66-67. [27] Shenaar-Golan V. The subjective well-being of parents of children with developmental disabilities: the role of hope as predictor and fosterer of well-being [J]. J Soc Work Disabil Rehabil, 2016, 15(2): 77-95. [28] 杨剑,严丽萍,王林,等. 家庭环境因素对儿童青少年幸福感的影响[J]. 中国健康教育, 2016, 32(3): 221-225. [29] Trzesniewski KH, Donnellan MB, Moffitt TE, et al. Low self-esteem during adolescence predicts poor health, criminal behavior, and limited economic prospects during adulthood [J]. Dev Psychol, 2006, 42(2): 381-390. [30] 呙程昕. 主观幸福感与心理健康关系的研究综述[J]. 中华少年, 2016(19): 297-298. [31] 王涛,谭景予,关风光. 2~3岁脑瘫患儿行为问题影响因素及差异性研究[J]. 中国全科医学, 2015, 18(4): 458-462. [32] Micklewright JL, King TZ, O'Toole K, et al. Parental distress, parenting practices, and child adaptive outcomes following traumatic brain injury [J]. J Int Neuropsychol Soc, 2012, 18(2): 343-350. [33] Anne AB, Elyse R, Justin P, et al. Parent's psychological flexibility: associations with parenting and child psychosocial well-being [J]. J Context Behav Sci, 2016, 5(2): 111-120. [34] 刘合建,邱卓英,周文萍,等. ICF-CY理论与方法在脑性瘫痪康复中的应用[J]. 中国康复理论与实践, 2014, 20(1): 6-10. |