《中国康复理论与实践》 ›› 2010, Vol. 16 ›› Issue (7): 613-616.

• 论文 • 上一篇    下一篇

上海市闵行区脑瘫登记管理的初步结果

肖丽萍1,史惟2,康淑蓉1 ,郑健3,赵燕萍4,张元鹏3,杨红2   

  1. 1.上海市闵行区妇幼保健院,上海市 201102;2.复旦大学附属儿科医院康复中心,上海市 201102;3.上海市闵行区残疾人联合会,上海市 201100;4.上海市闵行区江川社区卫生服务中心,上海市 2010240。
  • 收稿日期:2010-05-14 修回日期:1900-01-01 出版日期:2010-07-25 发布日期:2010-07-25
  • 通讯作者: 史惟

Registry and Management for Cerebral Palsy in Minhang District of Shanghai

XIAO Li-ping, SHI Wei, KANG Shu-rong, et al.   

  1. Maternal and Child Healthcare Hospital in Minhang of Shanghai, Shanghai , China
  • Received:2010-05-14 Revised:1900-01-01 Published:2010-07-25 Online:2010-07-25

摘要: 目的总结脑瘫登记管理的初步结果。方法报道上海市闵行区脑瘫登记管理过程。结果和结论从2009年2月起对闵行区具有户籍的脑瘫儿童及其家庭采用Scpchild脑瘫登记与系统管理手册实施登记。至2009年年底共有41例脑瘫患儿加入脑瘫登记。与脑瘫流行病学调查相比,脑瘫登记管理可以获得更多的信息。应该加强家长对脑瘫登记的认同度,提高脑瘫登记的覆盖程度。

关键词: 脑性瘫痪, 登记管理, 上海市

Abstract: ObjectiveTo report the preliminary results of registry and management for cerebral palsy in Minhang District of Shanghai. MethodsThe registry and management for cerebral palsy in Minhang District of Shanghai were reviewed. Results and ConclusionFrom February, 2009, the children with cerebral palsy (born from Jan.1, 2000 to Dec.31, 2008) and their families who resided in Minhang District participated in the registration adopting Scpchild Manual of Registry and Systematic Management for Cerebral Palsy. At the end of 2009, 41 children with cerebral palsy entered in the Registry System. Comparing with epidemiological investigation, registry and management for cerebral palsy can afford more information. The acceptance of the parents for registry need to be improved to extend the registry to more children.

Key words: cerebral palsy, registry and management, Shanghai