《中国康复理论与实践》

《中国康复理论与实践》 ›› 2011, Vol. 17 ›› Issue (3): 277-279.

• 论文 • 上一篇    下一篇

深圳市康复脑瘫患儿及家庭状况调查分析

干芊1，周安燕2，胡瑛2   

  1. 1.中山大学资讯管理学院，广东广州市 510006；2.深圳市儿童医院康复科，广东深圳市 518026。
  • 收稿日期:2011-01-17 修回日期:1900-01-01 出版日期:2011-03-25 发布日期:2011-03-25
  • 通讯作者: 胡瑛

Investigation of Children with Cerebral Palsy in Rehabilitation and Their Families in Shenzhen

GAN Qian, ZHOU An-yan, HU Ying.   

  1. School of Information Management, Sun Yat-sen University, Guangzhou 510006, Guangdong, China
  • Received:2011-01-17 Revised:1900-01-01 Published:2011-03-25 Online:2011-03-25

PDF (PC)

被引次数

37

摘要： 目的调查接受康复的脑瘫患儿及所在家庭的情况，以及社会予其的关注度。方法采用自拟调查表，对接受康复治疗的150例脑瘫患儿的基本状况、家庭情况、社会关注度及家长对社会支持的需求进行调查。结果收到有效调查表150份。75例首次治疗年龄1岁以内；130例康复治疗有效；126例有情绪及人格特征变化。患儿以家庭教育为主（133例）；59.4%母亲学历中专或高中以下。76.7%脑瘫患儿家庭年收入不足6万元，而54.7%年治疗费超过4万元。119例患儿父母单、双方放弃工作，其中93.3%有精神压力；56.7%对脑瘫知识了解匮乏。81%的家长认为社会应在政府福利、社会保障、医疗机构、心理治疗、社区训练及法律帮助等6个方面给予支持。结论社会各层面都应关心脑瘫患儿，为其康复创造良好环境。

关键词: 脑性瘫痪, 儿童, 康复, 家庭, 社会支持

Abstract: ObjectiveTo investigate the children with cerebral palsy (CP) in rehabilitation, their families and need of society support. Methods150 children with CP in rehabilitation participated in this study. A questionnaire was designed to investigate their basic situation, family status, society concern and requirements for society support, which completed by their parents. Results150 questionnaires were completed efficiently. 75 children were firstly treated before 1 year old. The rehabilitation treatments were effective to 130 children. 126 children appeared some disorder in emotion and personality. Home education was the main rehabilitation way in 133 children. The educational background of 59.4% mothers were senior high school or below. The income was less than 60 thousand yuan in 76.7% families, but spent more than 40 thousand yuan per year on treatment in 54.7% families. One or both parents in 119 families were forced to stop working. 93.3% of them suffered emotion pressure and 56.7% lacked the knowledge about CP. 81% families thought that more social support should be offered in 6 aspects including government welfare, social security, medical institutions, psychotherapy, community services and legal aid. ConclusionAll society should pay more attention on the children with CP and provide a good rehabilitation environment for them.

Key words: cerebral palsy, children, rehabilitation, family, social support