康复期脑卒中患者疾病体验及需求的Meta整合

doi:10.3969/j.issn.1006-9771.2026.03.005

《中国康复理论与实践》 ›› 2026, Vol. 32 ›› Issue (3): 286-293.doi: 10.3969/j.issn.1006-9771.2026.03.005

康复期脑卒中患者疾病体验及需求的Meta整合

朱丽丽¹(), 赵嘉欣¹, 程雪¹, 王会娟², 陈小霞³

¹ 河南医药大学护理学院，河南新乡市 453000
² 河南医药大学第一临床学院，河南新乡市 453000
³ 河南医药大学第五临床学院，河南新乡市 453000

收稿日期:2025-08-12 修回日期:2026-02-04 出版日期:2026-03-25 发布日期:2026-04-01
通讯作者: 朱丽丽，E-mail：lilyer2000@126.com
作者简介:朱丽丽(1981-)，女，汉族，河南新乡市人，硕士，副教授，主要研究方向：慢性病疾病管理
基金资助:
1.河南省高等学校重点科研项目(24A320015);2.新乡市政府决策研究课题(B24172)

Experiences and needs of stroke patients during rehabilitation: a qualitative meta-synthesis

ZHU Lili¹(), ZHAO Jiaxin¹, CHENG Xue¹, WANG Huijuan², CHEN Xiaoxia³

¹ School of Nursing, Henan Medical University, Xinxiang, Henan 453000, China
² the First School of Clinic, Henan Medical University, Xinxiang, Henan 453000, China
³ the Fifth School of Clinic, Henan Medical University, Xinxiang, Henan 453000, China

Received:2025-08-12 Revised:2026-02-04 Published:2026-03-25 Online:2026-04-01
Contact: ZHU Lili, E-mail: lilyer2000@126.com
Supported by:
Henan Higher Education Institutions Key Scientific Research Project(24A320015);Xinxiang Municipality Government Decision-Making Research Project(B24172)

摘要/Abstract

摘要：

目的系统整合康复期脑卒中患者的患病体验及需求。

方法检索Cochrane Library、PubMed、Embase、Web of Science、CINAHL、中国知网、中国生物医学文献数据库、万方数据库和维普数据库等关于康复期脑卒中患者的患病体验及需求的质性研究，检索时限建库至2024年12月。采用Joanna Briggs研究所循证卫生保健中心质性研究评价清单进行文献质量评价，采用汇集性整合方法对结果进行归纳与整合。

结果共纳入10个研究，提炼出49个主题，归纳为10个类别，最终整合成3个主题：负性疾病感知、多元康复动力和未被满足的需求。

结论脑卒中患者在康复期经历复杂的身心体验并存在多维度需求。

关键词: 脑卒中, 康复期, 疾病体验, 质性研究, Meta整合

Abstract:

Objective To systematically synthesize the illness experiences and unmet needs of patients with stroke during the rehabilitation phase.

Methods Qualitative studies focusing on the illness experiences and needs of stroke patients in the rehabilitation period were retrieved from the databases of Cochrane Library, PubMed, Embase, Web of Science, CINAHL, CNKI, CBM, Wanfang data and VIP. The search timeframe was from database inception to December, 2024. Methodological quality was evaluated using the Joanna Briggs Institute Qualitative Assessment and Review Instrument. A meta-synthesis method was adopted to categorize and integrate the findings.

Results A total of ten studies were included. Forty-nine themes were extracted and further grouped into ten categories, which were finally integrated into three overarching themes: negative illness perceptions, multifaceted rehabilitation motivations and unmet multidimensional needs.

Conclusion Patients with stroke undergo complex physical and psychological experiences during rehabilitation and present diverse and multidimensional needs.

Key words: stroke, rehabilitation period, illness experience, qualitative research, meta-synthesis

中图分类号:

R743.3

朱丽丽, 赵嘉欣, 程雪, 王会娟, 陈小霞. 康复期脑卒中患者疾病体验及需求的Meta整合[J]. 《中国康复理论与实践》, 2026, 32(3): 286-293.

ZHU Lili, ZHAO Jiaxin, CHENG Xue, WANG Huijuan, CHEN Xiaoxia. Experiences and needs of stroke patients during rehabilitation: a qualitative meta-synthesis[J]. Chinese Journal of Rehabilitation Theory and Practice, 2026, 32(3): 286-293.

图/表 3

图1

表1

表2

纳入文献的基本特征"

纳入研究	国家	研究设计	研究对象	感兴趣的现象	情景因素	主要研究结果
顾慧妹^[21] (2019)	中国	现象学研究(面对面深入访谈)	37~59岁，n = 10	中青年脑卒中患者恢复期心理变化及需求	康复病房	提炼6个主题：康复情感体验；经济压力；家庭角色改变；社会角色改变；康复认知体验；正性康复体验
王燕飞等^[22] (2018)	中国	现象学研究(观察法、深入访谈)	33~45岁，n = 15	青年脑卒中患者家庭康复体验及需求	受访者家中	提炼4个主题：行为体验；心理体验；态度体验；认知体验
Röding等^[23] (2003)	瑞典	现象学研究(深入访谈)	37~54岁，n = 5	脑卒中患者如何度过康复阶段	受访者家中	提炼2个主题：瘫痪后的生活；外界的和无形的影响
Lawrence等^[24] (2012)	英国	现象学研究(非结构化访谈)	37~54岁，n = 10	青年脑卒中患者康复相关需求、优先项和预期结果等体验	受访者家中或受访者选定的地点	提炼1个主题：身体迷失感
Taule等^[25] (2014)	挪威	现象学研究 (半结构化、面对面访谈)	45~80岁，n = 8	轻度脑卒中患者在家庭进行康复的生活体验	受访者家中或医疗机构	提炼5个主题：自我感知的健康状况；身体状况；实际活动；参与社会；自我认知
Chang等^[26] (2022)	中国	现象学研究 (焦点小组)	35~64岁，n = 25	青年脑卒中患者的康复体验，及其康复信念、目标、促进和障碍因素	康复病房	提炼2个主题：康复的促进因素；康复的阻碍因素
Van Dongen等^[27] (2021)	冰岛	描述性质性研究(焦点小组、半结构化访谈)	44~75岁，n = 10	脑卒中患者在社区和家庭康复的经历	康复中心和受访者喜欢的地点	提炼3个主题：在日常生活的背景下锻炼；管理身体损伤带来的挑战；日常生活的长期挑战
Chau等^[28] (2022)	中国	描述性质性研究(半结构化访谈)	47~75岁，n = 50	社区脑卒中患者当前的康复经历、需求和期望	医院或受访者家中或电话	提炼4个主题：社会生活的转变；动摇的自我意识和无助感；复杂的康复需求；身体活动的感知和模式
Kelly等^[29] (2022)	澳大利亚	现象学研究(半结构化访谈、焦点小组)	30-59岁，n = 6	脑卒中患者的康复需求	受访者家中	提炼5个主题：家庭的重要性；偏远地区康复服务缺乏；交通挑战；对生活的影响；家庭康复活动
Jackson等^[30] (2022)	澳大利亚	扎根理论(半结构化、深入访谈)	32~75岁，n = 15	偏远地区脑卒中患者对康复的看法	大学办公室或受访者家中或电话	提炼2个主题：随着生活的发展过自己的生活；努力恢复自己的生活

表2

参考文献 49

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文献	①	②	③	④	⑤	⑥	⑦	⑧	⑨	⑩	总体质量
顾慧妹^[21] (2019)	√	√	√	√	√	√	√	√	-	√	B
王燕飞等^[22](2018)	-	√	√	√	√	×	√	√	√	√	B
Röding等^[23] (2003)	-	√	√	√	√	×	√	√	√	√	B
Lawrence等^[24] (2012)	√	√	√	√	√	×	×	√	√	√	B
Taule等^[25] (2014)	-	√	√	√	√	√	×	√	√	√	B
Chang等^[26] (2022)	√	√	√	√	√	×	×	√	√	√	B
Van Dongen等^[27] (2021)	√	√	√	√	√	√	√	√	√	√	A
Chau等^[28] (2022)	-	√	√	√	√	√	×	√	√	√	B
Kelly等^[29] (2022)	√	√	√	√	√	√	-	√	√	√	B
Jackson等^[30] (2022)	√	√	√	√	√	√	√	√	√	√	A

康复期脑卒中患者疾病体验及需求的Meta整合

Experiences and needs of stroke patients during rehabilitation: a qualitative meta-synthesis

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