目的 研究唐山大地震幸存脊髓损伤患者中,集中居住和分散居住两组不同人群的生活质量和生活满意度。方法 2016年2月至5月,对76名1976年唐山大地震幸存脊髓损伤患者的生活质量进行调查,其中在疗养院或康复村集中居住者38名,在家中分散居住者38名。采用世界卫生组织生活质量测定量表简表(WHOQOL-BREF)和生活满意度评估表比较两组生活质量和生活满意度。结果 集中居住组WHOQOL-BREF的生理、心理、社会关系和环境4个领域得分均显著高于分散居住组(t>8.97, P<0.001),生活满意度显著高于分散居住组(t=6.55, P<0.001)。结论 集中居住可提高地震幸存脊髓损伤患者的生活质量和生活满意度。
Objective To explore the effect of living mode on quality of life and life satisfaction of patients with spinal cord injury who survived Tangshan earthquake. Methods From February to May, 2016, 76 patients with spinal cord injury survived the earthquake were investigated, among whom 38 patients lived in the nursing home or rehabilitation village and the other 38 patients discretely lived at home. Their quality of life and life satisfaction were assessed with WHO Quality of Life-BREF (WHOQOL-BREF) and Life Satisfaction Assessment respectively. Results The scores of physical, psychological, social adaptation and environment field in WHOQOL-BREF were significantly higher in the concentrated living group than in the scattered living group (t>8.97, P<0.001), as well as the life satisfaction (t=6.55, P<0.001). Conclusion The concentrated living mode could improve the quality of life and life satisfaction of the patients with spinal cord injury survived Tangshan earthquake.
[1] 唐山民政局. 社会救济-震后截瘫安置[M]//唐山民政志(1878-1988). 唐山:唐山民政局, 1990: 236-237.
[2] 郝元涛,方积乾. 世界卫生组织生存质量测定量表简表(WHOQOL) -BREF[J]. 中国行为科学, 2001, 10(2): 67-69.
[3] Fugl-Meyer AR, Bränholm IB, Fugl-Meyer KS. Happiness and domain-specific life satisfaction in northern Swedes [J]. Clin Rehabil, 1991, 5(1): 25-33.
[4] Kennedy P, Duff J. Post traumatic stress disorder and spinal injuries [J]. Spinal Cord, 2001, 39(1): 1-10.
[5] Kennedy P, Evans MJ. Evaluation of post traumatic distress in the first 6 months following SCI [J]. Spinal Cord, 2001, 39(7): 381-386.
[6] World Health Organization WHOQOL User Manual [Z]. 1998.
[7] 刘长美,郑净,杨小丽,等.外伤性截瘫患者生存质量与社会支持的相关性研究[J]. 护理学杂志, 2007, 22(4): 1-3.
[8] 王菊惠,王国立. 截瘫患者生命质量研究进展[J]. 中国煤炭工业医学杂志, 2007, 10(10): 1142-1143.
[9] Burns AS, O'Connell C, Landry MD. Spinal cord injury in post earthquake Haiti: lessons learned and future needs [J]. PM R, 2010, 2(8): 695-697.
[10] 贾福军,徐广明, 张洪,等. 唐山地震21年后截瘫者的心理状况及生存质量[J]. 中国临床康复, 2002, 10(6): 1408-1409.
[11] Rathore MF, Hanif S, Farooq F, et al. Traumatic spinal cord injuries at a tertiary care rehabilitation institute in Pakistan [J]. J Pak Med Assoc, 2008, 58(2): 53-57.
[12] Rathore MF, Farooq F, Butt AW, et al. An update on spinal injuries in October 2005 earthquake in Pakistan [J]. Spinal Cord, 2008, 46(6): 461-462.
[13] 鲁萍. 截瘫患者家庭照顾者负担及其影响因素分析[J]. 护理管理杂志, 2007, 22(4): 16-17.
[14] Shin DC, Johnson DM. Avowed happiness as an overall assessment of the quality of life [J]. Social Indicators Research, 1978, 5(1): 475-492.