《中国康复理论与实践》

《中国康复理论与实践》 ›› 2003, Vol. 9 ›› Issue (11): 685-686.

• 临床康复 • 上一篇    下一篇

麻风畸残患者的康复认知与需求

严良斌; 张国成; A Piefer; 钱坚革   

  1. 1.中国医学科学院中国协和医科大学皮肤病研究所康复研究室 南京市 210042;2.国际麻风救济会理疗师(A Piefer)
  • 收稿日期:2003-06-17 出版日期:2003-11-25 发布日期:2003-11-25

Rehabilitation awareness and needs in patients with disability due to leprosy

YAN Liang-bin, ZHANG Guo-cheng, A Piefer, et al   

  1. Institute of Dermatology, Chinese Academy of Medical Sciences, Peking Union Medical College, Nanjing 210042,Jiangsu,China
  • Received:2003-06-17 Published:2003-11-25 Online:2003-11-25

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摘要： 目的了解麻风畸残患者的康复认知及需求。方法对7个省的23个麻风防治现场已往接受麻风康复教育的4353例麻风患者以问卷及面谈的方式进行调查。结果 80%的患者认知麻风畸残预防及康复的一般常识,知信自我护理预防畸残,但知行未合一;90%的患者欠缺对麻风的早期表现及治疗、畸残发生的根本原因和足底溃疡主要防护方法的了解。康复教育的需求方式大部分患者选择医护人员演示(86%)、阅读手册示意图(81%),其次为看录像(70%)、听录音(52%)。结论麻风康复知行合一势在必行,建议康复教育的时间应提前,内容应系统化,方法应多样化。

关键词: 麻风畸残, 康复认知, 康复需求

Abstract: ObjectiveTo determine the rehabilitation awareness and needs in patients with disability due to leprosy.Methods4353 patients in 23 fields of 7 provinces were surveyed by interview and questionnaire.Results80% of patients knew general knowledge of disability prevention and rehabilitation, and believed that the self-care could prevent disability; but they seldom carried out the daily self-care practice.90% of patients lacked awareness in early manifestation of leprosy, treatment of the disease, basic cause of disability, and the way to prevent such as plantar ulcers. For needs of rehabilitation education, teaching by medical staff(86%), booklet(81%), video tape(70%) and recording(52%) had been selected.ConclusionThe awareness of rehabilitation and the practice must be combined together. Rehabilitation education should be carried out in advance systemically through different ways.

Key words: leprosy disability, rehabilitation awareness, rehabilitation need