《Chinese Journal of Rehabilitation Theory and Practice》 ›› 2019, Vol. 25 ›› Issue (10): 1221-1227.doi: 10.3969/j.issn.1006-9771.2019.00.011

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Status Quo and Development of Hope Houses for Individuals with Spinal Cord Injury in Shanghai from Perspective of Managers and Organizers

XIE Hai-xia1, YANG Yu-hui2, WU Ai-rong1, SHEN Chen1, HU Long-jun2,3, ZHANG Jia1, LIN Pei-pei1, CHEN Gang2, LÜ Jun2, CHANG Feng-shui2   

  1. 1.Shanghai Yangzhi Rehabilitation Hospital (Shanghai Sunshine Rehabilitation Center), Shanghai 201619, China;
    2.China Research Center on Disability/School of Public Health, Fudan University, Shanghai 200032, China;
    3.The Tenth People's Hospital of Tongji University, Shanghai 200072, China
  • Published:2019-10-25 Online:2019-10-30
  • Contact: CHANG Feng-shui, E-mail: changfsh@fudan.edu.cn E-mail:changfsh@fudan.edu.cn
  • Supported by:
    Supported by National Natural Science Foundation of China (No. 71673052), China Scholarship Council (No. 201506105030), Shanghai Municipal Human Resources and Social Security Bureau Pujiang Program (No.17PJC003), Shanghai Disabled Persons' Federation Key Disciplines Construction (No. 2015-139), National Social Science Foundation of China (Major) (No. 17ZDA078) and National Science & Technology Pillar Program during the Twelfth Five-year Plan Period (No. 2014BAI08B01)

Abstract: Objective To analyze the status quo and development of the Hope Houses for individuals with spinal cord injury (SCI) in Shanghai. Methods In June, 2018, the organizers and managers of Hope Houses from 16 districts in Shanghai were investigated with the self-designed questionnaires, which covered the personal characteristics, knowledge of related policy, development of projects and obstacles, and rehabilitation recognition. The descriptive analysis and correlational analyses were conducted. Results Totally, eleven organizers and 16 managers were investigated. The knowledge of related policy for organizers was not good enough. Eight Hope Houses in 16 districts in Shanghai were operated by social organizations. The average implementation rate of projects in Hope Houses was 60.6%, and the highest was rehabilitation knowledge education (96.3%). There was insufficient provision in legal services, job skills training, rehabilitation nursing guidance, job referral, medical referral and education referral, etc. The main related factors limiting the development of the Hope Houses were lacks of budgets, social consensus and professionals. The rehabilitation cognition of organizers and managers was generally good, but the cognition of rehabilitation principles and rehabilitation value needed to be strengthened. Conclusion The Hope Houses for individuals with SCI in Shanghai work well, and the rehabilitation cognition of organizers and managers is satisfactory. It should be strenghened in resource input, comprehensive rehabilitation and standard of management, to expand the service timely.

Key words: spinal cord injury, Hope Houses, community-based rehabilitation, cognitive evaluation, Shanghai

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