《Chinese Journal of Rehabilitation Theory and Practice》 ›› 2020, Vol. 26 ›› Issue (5): 534-538.doi: 10.3969/j.issn.1006-9771.2020.05.008

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Unmet Needs and Services of Nursing Care for Adults with Extremely Severe and Severe Intellectual Disabilities Using Structural Equation Analysis

CHEN Jia-ni1,2,3,4,LI An-qiao4,5,LI Lun4,6,QIU Zhuo-ying1,2,4(),SUN Hong-wei4,7,TIAN Bao3(),SHEN Zhao-hui1,2,3,4,LI Xin4,6,CHEN Di1,2,4,ZHU Ting8,MA Hong-zhuo4,7,TIAN Hong-mei5,CHENG Zi-wei5   

  1. 1. Research Institute of Rehabilitation Information, China Rehabilitation Research Centre, Beijing 100068, China
    2. Research Institute of Rehabilitation Information, China Rehabilitation Sciences Institute, Beijing 100068, China
    3. School of Psychology, Capital Normal University, Beijing 100037, China
    4. WHO Collaborating Center for China, Family of International Classifications, Beijing 100068, China
    5. China Key Laboratory of Classification, Evaluation and Rehabilita‐ tion (Sport) of Intellectual and Development Disability/School of Physical Education (Main Campus), Zhengzhou Uni‐ versity, Zhengzhou, Henan 450001, China
    6. Shenzhen Disabled Persons' Federation, Shenzhen, Guangdong 518008, China
    7. China Academy of ICF/Weifang Medical University, Weifang, Shandong 261053, China
    8. Shenzhen Longgang Special Education School, Shenzhen, Guangdong 518100, China
  • Received:2020-04-30 Published:2020-05-25 Online:2020-05-29
  • Contact: QIU Zhuo-ying,TIAN Bao E-mail:qiutiger@hotmail.com;tianbao65@126.com
  • Supported by:
    National Special Fund Projects of Basic Research of Public Benefits for Institutes at Central Governmental Level (Leading Project of Major Scientific Research)(2017CZ-7);National Special Fund Projects of Basic Research of Public Benefits for Institutes at Central Governmental Level (Leading Project of Major Scientific Research)(2018CZ-4)

Abstract:

Objective To explore the characteristics and related factors of unmet needs of nursing care and service for adults with extremely severe and severe intellectual disabilities.Methods A total of 127 547 adults with extremely severe and severe intellectual disabilities were sampled. Descriptive statistics and multiple response analysis were conducted, and a structural equation model of unmet needs of nursing care and received the services was developed. Results A total of 26 038 adults with extremely severe and severe intellectual disabilities reported unmet needs of rehabilitation, including nursing care (52.50%), medicine (36.90%), assistive device (20.90%), functional training (19.70%) and surgery (0.80%) respectively. A total of 11 640 adults with extremely severe and severe intellectual disabilities reported received rehabilitation services, including nursing care (49.90%), medicine (36.80%), functional training (19.10%), assistive device (14.10%) and surgery (1.00%) respectively. The structural equation model showed that received nursing care service (main effect = 0.646) and received rehabilitation services (included nursing care) (main effect = 0.014), age (main effect = 0.031), household registration (main effect = 0.015) and educational level (main effect = -0.158) had effects on unmet needs of nursing care (P < 0.001). Conclusion Adults with extremely severe and severe intellectual disabilities reported unmet needs mainly involved in field of nursing care, and their rehabilitation services mapped to their main needs. It proposed to develop rehabilitation services tailored to their rehabilitation experience, age, socioeconomic status, functional conditions and characteristic of unmet needs, to develop accessible services items and individualized nursing care programs, and to expand the nursing care service supply and coverage of nursing care.

Key words: intellectual disabilities, nursing care, unmet needs of rehabilitation, services of rehabilitation

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