《Chinese Journal of Rehabilitation Theory and Practice》 ›› 2021, Vol. 27 ›› Issue (10): 1152-1158.doi: 10.3969/j.issn.1006-9771.2021.10.005
Previous Articles Next Articles
XIA Cong1,2,SUN Mei1,2,3(),LÜ Jun1,2,3,QIU Fu-bing4,QIU Fen5,ZHENG Hong-ying1,2
Received:
2021-08-20
Revised:
2021-08-30
Published:
2021-10-25
Online:
2021-10-29
Contact:
SUN Mei
E-mail:sunmei@fudan.edu.cn
Supported by:
CLC Number:
XIA Cong,SUN Mei,LÜ Jun,QIU Fu-bing,QIU Fen,ZHENG Hong-ying. Anxiety and Its Influencing Factors of Caregivers for Children with Disabilities[J]. 《Chinese Journal of Rehabilitation Theory and Practice》, 2021, 27(10): 1152-1158.
"
家庭角色 | 被照护对象残疾类型 | 合计 | |||||||
---|---|---|---|---|---|---|---|---|---|
视力 | 听力 | 言语 | 肢体 | 智力 | 精神 | 多重 | 未定残 | ||
母亲 | 12(4.5) | 40(15.1) | 20(7.5) | 61(23.0) | 28(10.6) | 40(15.1) | 36(13.6) | 28(10.6) | 265(100.0) |
父亲 | 12(12.2) | 17(17.3) | 5(5.1) | 22(22.4) | 8(8.2) | 13(13.3) | 10(10.2) | 11(11.2) | 98(100.0) |
(外)祖母 | 4(4.4) | 9(10.0) | 4(4.4) | 36(40.0) | 11(12.2) | 7(7.8) | 4(4.4) | 15(16.7) | 90(100.0) |
(外)祖父 | 4(9.3) | 6(14.0) | 3(7.0) | 10(23.3) | 7(16.3) | 1(2.3) | 4(9.3) | 8(18.6) | 43(100.0) |
合计 | 32(6.5) | 72(14.5) | 32(6.5) | 129(26.0) | 54(10.9) | 61(12.3) | 54(10.9) | 62(12.5) | 496(100.0) |
"
维度 | 变量 | 是否焦虑 | ||
---|---|---|---|---|
无焦虑 | 焦虑 | |||
照护者 | 家庭角色 | 母亲 | 160(60.4) | 105(39.6) |
父亲 | 73(74.5) | 25(25.5) | ||
(外)祖母 | 53(58.9) | 37(41.1) | ||
(外)祖父 | 36(83.7) | 7(16.3) | ||
患病状况 | 有疾病 | 87(56.1) | 68(43.9) | |
无疾病 | 235(68.9) | 106(31.1) | ||
应对方式a | 积极应对 | 247(65.7) | 129(34.3) | |
消极应对 | 75(66.4) | 38(33.6) | ||
被照护对象 | 年龄 | 0 ~< 6岁 | 188(67.4) | 91(32.6) |
6~18岁 | 134(61.8) | 83(38.2) | ||
性别 | 男 | 194(63.4) | 112(36.6) | |
女 | 128(67.4) | 62(32.6) | ||
残疾类型 | 视力 | 27(84.4) | 5(15.6) | |
听力 | 58(80.6) | 14(19.4) | ||
言语 | 25(78.1) | 7(21.9) | ||
肢体 | 77(59.7) | 52(40.3) | ||
智力 | 29(53.7) | 25(46.3) | ||
精神 | 36(59.0) | 25(41.0) | ||
多重 | 28(51.9) | 26(48.1) | ||
未定残 | 42(67.7) | 20(32.3) | ||
睡眠质量 | 有睡眠问题 | 66(50.0) | 66(50.0) | |
无睡眠问题 | 256(70.3) | 108(29.7) | ||
情绪稳定性 | 不稳定 | 2(16.7) | 10(83.3) | |
一般 | 254(63.2) | 148(36.8) | ||
稳定 | 66(80.5) | 16(19.5) | ||
家庭环境 | 家庭人均 | < 3000元 | 35(46.7) | 40(53.3) |
月收入b | 3000~< 5000元 | 73(61.9) | 45(38.1) | |
5000~< 10000元 | 105(68.2) | 49(31.8) | ||
≥ 10000元 | 106(73.1) | 39(26.9) | ||
住房性质c | 租住房屋 | 49(50.5) | 48(49.5) | |
自有房屋 | 273(68.6) | 125(31.4) | ||
家庭氛围c | 不和睦 | 186(59.4) | 127(40.6) | |
和睦 | 136(74.7) | 46(25.3) | ||
社会环境 | 公共政策d | 不满意 | 20(43.5) | 26(56.5) |
一般 | 283(66.7) | 141(33.3) | ||
满意 | 19(79.2) | 5(20.8) | ||
社会态度d | 不友好 | 16(39.0) | 25(61.0) | |
一般 | 254(66.3) | 129(33.7) | ||
友好 | 52(74.3) | 18(25.7) | ||
总体无障 | 不满意 | 7(28.0) | 18(72.0) | |
碍建设d | 一般 | 284(66.0) | 146(34.0) | |
满意 | 31(79.5) | 8(20.5) |
"
维度 | 变量(参照变量) | B | S.E. | χ2值 | P值 | OR | 95%CI |
---|---|---|---|---|---|---|---|
照护者 | 家庭角色(母亲) | 5.895 | 0.117 | ||||
父亲 | -0.372 | 0.298 | 1.556 | 0.212 | 0.689 | 0.384~1.237 | |
(外)祖母 | -0.061 | 0.324 | 0.036 | 0.850 | 0.941 | 0.499~1.774 | |
(外)祖父 | -1.145 | 0.530 | 4.663 | 0.031 | 0.318 | 0.113~0.900 | |
患病状况(无疾病) | 0.339 | 0.264 | 1.650 | 0.199 | 1.404 | 0.837~2.357 | |
应对方式(消极应对) | 0.482 | 0.286 | 2.842 | 0.092 | 1.620 | 0.925~2.838 | |
被照护对象 | 年龄(< 6岁) | 0.006 | 0.247 | 0.001 | 0.979 | 1.006 | 0.621~1.632 |
性别(男) | -0.116 | 0.232 | 0.248 | 0.619 | 0.891 | 0.565~1.404 | |
残疾类型(未定残) | 10.738 | 0.150 | |||||
视力 | -0.968 | 0.660 | 2.149 | 0.143 | 0.380 | 0.104~1.385 | |
听力 | -0.844 | 0.463 | 3.329 | 0.068 | 0.430 | 0.174~1.065 | |
言语 | -0.610 | 0.581 | 1.101 | 0.294 | 0.543 | 0.174~1.698 | |
肢体 | 0.194 | 0.382 | 0.259 | 0.611 | 1.215 | 0.575~2.566 | |
智力 | 0.123 | 0.461 | 0.072 | 0.789 | 1.131 | 0.459~2.791 | |
精神 | -0.130 | 0.442 | 0.087 | 0.769 | 0.878 | 0.370~2.087 | |
多重 | 0.209 | 0.473 | 0.196 | 0.658 | 1.232 | 0.488~3.112 | |
睡眠质量(无睡眠问题) | 0.538 | 0.252 | 4.581 | 0.032 | 1.713 | 1.046~2.805 | |
情绪稳定性(不稳定) | 13.297 | 0.001 | |||||
一般 | -2.870 | 0.913 | 9.876 | 0.002 | 0.057 | 0.009~0.340 | |
稳定 | -3.470 | 0.961 | 13.038 | < 0.001 | 0.031 | 0.005~0.205 | |
家庭环境 | 家庭人均月收入(< 3000元) | 9.976 | 0.019 | ||||
3000~< 5000元 | -0.583 | 0.353 | 2.739 | 0.098 | 0.558 | 0.280~1.113 | |
5000~< 10000元 | -0.769 | 0.344 | 4.998 | 0.025 | 0.463 | 0.236~0.909 | |
≥ 10000元 | -1.124 | 0.362 | 9.654 | 0.002 | 0.325 | 0.160~0.660 | |
住房性质(租住房屋) | -1.033 | 0.273 | 14.262 | < 0.001 | 0.356 | 0.208~0.608 | |
家庭氛围(和睦) | 0.444 | 0.244 | 3.319 | 0.068 | 1.559 | 0.967~2.514 | |
社会环境 | 公共政策(不满意) | 3.569 | 0.168 | ||||
一般 | -0.726 | 0.388 | 3.496 | 0.062 | 0.484 | 0.226~1.036 | |
满意 | -0.836 | 0.708 | 1.396 | 0.237 | 0.433 | 0.108~1.735 | |
社会态度(不友好) | 1.305 | 0.521 | |||||
一般 | -0.475 | 0.426 | 1.245 | 0.265 | 0.622 | 0.270~1.432 | |
友好 | -0.543 | 0.553 | 0.965 | 0.326 | 0.581 | 0.197~1.717 | |
总体无障碍建设(不满意) | 6.906 | 0.032 | |||||
一般 | -0.959 | 0.550 | 3.044 | 0.081 | 0.383 | 0.130~1.126 | |
满意 | -1.998 | 0.761 | 6.896 | 0.009 | 0.136 | 0.031~0.602 | |
常量 | 5.194 | 1.238 | 17.614 | < 0.001 | 180.199 |
[1] | 梁兵, 丁相平, 邱卓英, 等. 残疾儿童的社区康复:理论、架构和方法[J]. 中国康复理论与实践, 2014, 20(9):817-819. |
LIANG B, DING X P, QIU Z Y, et al. Habilitation/rehabilitation of children with disabilities at community setting: framework and approach[J]. Chin J Rehabil Theory Pract, 2014, 20(9):817-819. | |
[2] | 李勇, 邵翠霞, 梁爱民, 等. 北京市发育障碍儿童康复及其影响因素调查[J]. 中国康复理论与实践, 2008, 14(10):989-991. |
LI Y, SHAO C X, LIANG A M, et al. Rehabilitation and related affecting factors in developmental disabled children in Beijing[J]. Chin J Rehabil Theory Pract, 2008, 14(10):989-991. | |
[3] | 盛威威, 李欣, 邱卓英, 等. 残疾儿童康复需求与康复服务发展研究[J]. 中国康复理论与实践, 2020, 26(5):502-507. |
SHENG W W, LI X, QIU Z Y, et al. Unmet needs and service of rehabilitation for children with disabilities[J]. Chin J Rehabil Theory Pract, 2020, 26(5):502-507. | |
[4] |
TOLEDANO-TOLEDANO F, MORAL DE LA RUBIA J, DOMINGUEZ-GUEDEA M T , et al. Validity and reliability of the Beck Anxiety Inventory (BAI) for family caregivers of children with cancer[J]. Int J Environ Res Public Health, 2020, 17(21):7765.
doi: 10.3390/ijerph17217765 |
[5] | 李安巧, 邱卓英, 吴弦光, 等. 康复2030:国际康复发展状况与行动呼吁[J]. 中国康复理论与实践, 2017, 23(4):379. |
LI A Q, QIU Z Y, WU X G, et al. Rehabilitation 2030: international rehabilitation development status and call to action[J]. Chin J Rehabil Theory Pract, 2017, 23(4):379. | |
[6] | 李欣, 邱卓英, 杨剑, 等. 康复2030:扩大康复规模以满足日益增长的康复需求[J]. 中国康复理论与实践, 2017, 23(4):380-384. |
LI X, QIU Z Y, YANG J, et al. Rehabilitation 2030: meet ever-increasing rehabilitation needs[J]. Chin J Rehabil Theory Pract, 2017, 23(4):380-384. | |
[7] | 世界卫生组织. 精神卫生:加强我们的应对活动[EB/OL]. (2018-03-30)[2021-08-12]. https://www.who.int/zh/news-room/fact-sheets/detail/mental-health-strengthening-our-response. |
WHO. Mental health:strengthening our response[EB/OL].(2018-03-30)[2021-08-12]. https://www.who.int/zh/news-room/fact-sheets/detail/mental-health-strengthening-our-response. | |
[8] |
WOODMAN A C, MAWDSLEY H P, HAUSER-CRAM P. Parenting stress and child behavior problems within families of children with developmental disabilities: transactional relations across 15 years[J]. Res Dev Disabil, 2015, 36:264-276.
doi: 10.1016/j.ridd.2014.10.011 |
[9] |
USKUN E, GUNDOGAR D. The levels of stress, depression and anxiety of parents of disabled children in Turkey[J]. Disabil Rehabil, 2010, 32(23):1917-1927.
doi: 10.3109/09638281003763804 |
[10] | HONG N, SHIN J Y, NGUYEN V N, et al. Stigma and restriction on the social life of families of children with intellectual disabilities in Vietnam[J]. Singapore Med J, 2012, 53(7):451-457. |
[11] | 崔德刚, 邱芬, 李中浩, 等. 基于ICF-CY残疾儿童青少年身体活动与功能康复的系统综述[J]. 中国康复理论与实践, 2021, 27(5):542-552. |
CUI D G, QIU F, LI Z H, et al. Physical activity and functional rehabilitation for children and youth based on ICF-CY: a systematic review[J]. Chin J Rehabil Theory Pract, 2021, 27(5):542-552. | |
[12] |
SCARINCI N, WORRALL L, HICKSONI L. The ICF and third-party disability: its application to spouses of older people with hearing impairment[J]. Disabil Rehabil, 2009, 31(25):2088-2100.
doi: 10.3109/09638280902927028a |
[13] | 钟丽娟, 林枫. 失语症第三方残疾:基于ICF框架的应用分析[J]. 中国康复, 2020, 35(2):82-86. |
ZHONG L J, LIN F. Third-party disability in aphasia: an applied analysis based on the ICF[J]. Chin J Rehabil, 2020, 35(2):82-86. | |
[14] |
TOUSSAINT A, HUESING P, GUMZ A, et al. Sensitivity to change and minimal clinically important difference of the 7-item Generalized Anxiety Disorder Questionnaire (GAD-7)[J]. J Affect Disord, 2020, 265:395-401.
doi: 10.1016/j.jad.2020.01.032 |
[15] | 邱卓英, 黎东晓, 李欣, 等. 当代智力残疾测量与统计方法和社会支持与服务体系研究[J]. 中国康复理论与实践, 2016, 22(4):383-388. |
QIU Z Y, LI D X, LI X, et al. Research on measurement and statistics, and social support and services for intellectual disability[J]. Chin J Rehabil Theory Pract, 2016, 22(4):383-388. | |
[16] | 邱卓英, 李欣, 刘冯铂, 等. 基于ICF的智力残疾模式、测量方法及社会支持系统研究[J]. 中国康复理论与实践, 2016, 22(4):373-377. |
QIU Z Y, LI X, LIU F B, et al. Framework, measurement, and social support of intellectual disability based on ICF[J]. Chin J Rehabil Theory Pract, 2016, 22(4):373-377. | |
[17] | KWAN A, BINGHAM K, TOUMA Z. Measures of anxiety in rheumatic diseases[J]. Arthritis Care Res, 2020, 72(S10):630-644. |
[18] |
SPITZER R L, KROENKE K, WILLIAMS J B W , et al. A brief measure for assessing generalized anxiety disorder: The GAD-7[J]. Arch Intern Med, 2006, 166(10):1092-1097.
doi: 10.1001/archinte.166.10.1092 |
[19] | 何筱衍, 李春波, 钱洁, 等. 广泛性焦虑量表在综合性医院的信度和效度研究[J]. 上海精神医学, 2010, 22(4):200-203. |
HE X Y, LI C B, QIAN J, et al. Reliability and validity of a generalized anxiety disorder scale in general hospital outpatients[J]. Shanghai Arch Psych, 2010, 22(4):200-203. | |
[20] |
JOHNSON S U, ULVENS P G, OKTEDALEN T, et al. Psychometric properties of the General Anxiety Disorder 7-Item (GAD-7) Scale in a heterogeneous psychiatric sample[J]. Front Psychol, 2019, 10:1713.
doi: 10.3389/fpsyg.2019.01713 |
[21] | 项喜兵, 莫昊风, 何强勇, 等. PHQ-9和GAD-7量表分析下的脑瘫儿童家长心理状况及影响因素[J]. 中国康复, 2018, 33(6):499-501. |
XIANG X B, MO H F, HE Q Y, et al. Mental health and influencing factors among parents of children with Cerebral Palsy under the analysis of PHQ-9 and GAD-7[J]. Chin J Rehabil, 2018, 33(6):499-501. | |
[22] |
XIONG N N, YANG L, YU Y, et al. Investigation of raising burden of children with autism, physical disability and mental disability in China[J]. Res Dev Disabil, 2011, 32(1):306-311.
doi: 10.1016/j.ridd.2010.10.003 |
[23] | 世界卫生组织. 世卫组织2014~2021年全球残疾问题行动计划:增进所有残疾人的健康[J]. 中国康复理论与实践, 2014, 20(7):601-610. |
WHO. WHO global disability action plan 2014-2021: better health for all people with disability[J]. Chin J Rehabil Theory Pract, 2014, 20(7):601-610. | |
[24] | WHO. International Classification of Functioning, Disability and Health (ICF)[EB/OL]. [2021-7-27]. https://www.who.int/standards/classifications/international-classification-of-functioning-disability-and-health. |
[25] |
VILASECA R, FERRER F, GUARDIA OLMOS J. Gender differences in positive perceptions, anxiety, and depression among mothers and fathers of children with intellectual disabilities: a logistic regression analysis[J]. Qual Quant, 2014, 48(4):2241-2253.
doi: 10.1007/s11135-013-9889-2 |
[26] |
GLALLO R, SSYMOUR M, MATTHEWS J, et al. Risk factors associated with the mental health of fathers of children with an intellectual disability in Australia[J]. J Intellect Disabil Res, 2015, 59(3):193-207.
doi: 10.1111/jir.12127 |
[27] | 王滔, 李潇. 残疾儿童心理健康内涵及结构初探[J]. 残疾人研究, 2021(1):79-87. |
WANG T, LI X. Preliminary study on the connotation and structure of mental health of children with disabilties[J]. Disabil Res, 2021(1):79-87. | |
[28] |
BEN THABET J, SALLEMI R, HASIRI I, et al. Psycho-emotional impact of a child's disability on parents[J]. Arch Pediatr, 2013, 20(1):9-16.
doi: 10.1016/j.arcped.2012.10.024 |
[29] |
TOLEDANO-TOLEDANO F, MORAL DE LA RUBIA J . Factors associated with anxiety in family caregivers of children with chronic diseases[J]. Biopsychosoc Med, 2018, 12:20.
doi: 10.1186/s13030-018-0139-7 |
[30] |
CARLSON J M, MILLER P A. Family burden, child disability, and the adjustment of mothers caring for children with epilepsy: role of social support and coping[J]. Epilepsy Behav, 2017, 68:168-173.
doi: 10.1016/j.yebeh.2017.01.013 |
[31] | 郭婧, 吕军, 谢辉, 等. 健康中国背景下公众对无障碍环境的认知、行为意愿及其影响因素[J]. 医学与社会, 2021, 34(6):22-25. |
GUO J, LÜ J, XIE H, et al. Public cognition, behavioral intention and its influencing factors of barrier-free environment under the background of Healthy China[J]. Med Soc, 2021, 34(6):22-25. |
[1] | HAO Chuanping. Assistive technology application in educational contexts: policy framework and core areas [J]. 《Chinese Journal of Rehabilitation Theory and Practice》, 2024, 30(1): 119-124. |
[2] | ZHANG Jingya, ZOU Min, SUN Hongwei, SUN Changlong, ZHU Juntong. Effect of psychological intervention on anxiety or depression in children and adolescents with hearing impairment: a systematic review [J]. 《Chinese Journal of Rehabilitation Theory and Practice》, 2023, 29(9): 1004-1011. |
[3] | LI Jingyu, LÜ Yun, XIN Yu, LI Shuo, PENG Sijing, MI Zhongxiang. Downward referral willingness of rehabilitation patients in an urban medical group and its influencing factors [J]. 《Chinese Journal of Rehabilitation Theory and Practice》, 2023, 29(12): 1481-1488. |
[4] | CUI Jiabao, LIN Jian, LIU Yucheng, WANG Peng, ZENG Hongfa. Mental health benefits of Tai Chi for college students: a systematic review using ICF [J]. 《Chinese Journal of Rehabilitation Theory and Practice》, 2023, 29(1): 48-54. |
[5] | GE Zhangwei,HUANG Xin,LIU Zhengdong,ZHANG Min,ZHANG Jiakui. Factors related to post-operative delirium in middle-aged and elderly patients in intensive care unit and risk prediction model [J]. 《Chinese Journal of Rehabilitation Theory and Practice》, 2022, 28(3): 340-345. |
[6] | GU Bin,HUANG Fubiao,LI Hongyu,SONG Luping. Effect of transcranial direct current stimulation on post-stroke insomnia [J]. 《Chinese Journal of Rehabilitation Theory and Practice》, 2022, 28(12): 1466-1472. |
[7] | ZHANG Xiaotan,LI Jun,ZHANG Lingling,XIE Huimin,SUN Lijun,PAN Yu,LI Chunbao,JIA Zishan,ZHANG Lining. Functional disorders and related psychological factors in patients with chronic hip pain [J]. 《Chinese Journal of Rehabilitation Theory and Practice》, 2022, 28(12): 1484-1488. |
[8] | LIN Ai-jin,WANG Jie-qiong,AO Li-juan,CHEN Mo-xian. Long-term Behavioral Disorder after Hypoxic Ischemic Brain Damage in Newborn Mice [J]. 《Chinese Journal of Rehabilitation Theory and Practice》, 2021, 27(8): 908-912. |
[9] | Ying JIANG,Jin-ping FANG,Tao FENG,Hui-zi MA. Structural Differences in Series Scores of Hamilton Anxiety Scale in Parkinson's Disease Patients [J]. 《Chinese Journal of Rehabilitation Theory and Practice》, 2021, 27(3): 325-328. |
[10] | Na HUANG,Hui-xin ZHANG,Hao REN,Yu-qi GUO. Effect of Virtual Painless Ward Based on Mobile Internet on Pain Management for Patients after Craniotomy [J]. 《Chinese Journal of Rehabilitation Theory and Practice》, 2021, 27(2): 222-229. |
[11] | ZHENG Hong-ying,SUN Mei,LÜ Jun,QIU Fu-bing,LI An-qiao,XIA Cong. Current Situation Analysis of Care Support Needs in Children with Disabilities: from a Comprehensive Rehabilitation Perspective [J]. 《Chinese Journal of Rehabilitation Theory and Practice》, 2021, 27(10): 1117-1126. |
[12] | ZHANG Shi-ya,SUN Mei,LÜ Jun,XIA Cong,ZHENG Hong-ying,CHEN Gang,TANG Lei,WANG Xiao-qian. Quality of Life and Influencing Factors for Children with Disabilities in Developed Areas in China: a Case of Shanghai [J]. 《Chinese Journal of Rehabilitation Theory and Practice》, 2021, 27(10): 1127-1134. |
[13] | WANG Xiao-qian,LÜ Jun,SUN Mei,QIU Fen,QIU Fu-bing,LI An-qiao,XIA Cong. Nutritional Status of Children with Disabilities in Developed Areas in China: a Case of Shanghai [J]. 《Chinese Journal of Rehabilitation Theory and Practice》, 2021, 27(10): 1135-1143. |
[14] | CHEN Yu-qian,SUN Mei,LÜ Jun,QIU Fu-bing,QIU Fen,LI An-qiao,XIA Cong,ZHENG Hong-ying. Quality of Life and It's Influencing Factors for Caregivers of Children with Disabilities [J]. 《Chinese Journal of Rehabilitation Theory and Practice》, 2021, 27(10): 1144-1151. |
[15] | TANG Lei,CHEN Gang,LÜ Jun,SUN Mei,XIA Cong,ZHENG Hong-ying,LI Xiao-hong,WANG Xiao-qian. Depression and Its Influencing Factors of Caregivers for Children with Disabilities [J]. 《Chinese Journal of Rehabilitation Theory and Practice》, 2021, 27(10): 1159-1166. |
Viewed | ||||||
Full text |
|
|||||
Abstract |
|
|||||
|