Chinese Journal of Rehabilitation Theory and Practice ›› 2024, Vol. 30 ›› Issue (4): 454-461.doi: 10.3969/j.issn.1006-9771.2024.04.011
Previous Articles Next Articles
LIU Xing1a, ZHOU Yumei1b(
), XU Huili1b, PENG Jianying2, XIE Zheshu1a, XING Limin3, ZHAO Jun4
Received:2023-10-30
Revised:2024-01-23
Published:2024-04-25
Online:2024-05-08
Contact:
ZHOU Yumei, E-mail: Supported by:CLC Number:
LIU Xing, ZHOU Yumei, XU Huili, PENG Jianying, XIE Zheshu, XING Limin, ZHAO Jun. Structural equation model of influencing factors of anticipatory grief among main caregivers of young and middle-aged patients with severe stroke[J]. Chinese Journal of Rehabilitation Theory and Practice, 2024, 30(4): 454-461.
Table 1
Comparison of AGS scores of main caregivers of young and middle-aged patients with severe stroke among different characteristics (n = 300)"
| 项目 | n | AGS评分 | F/t值 | P值 | 项目 | n | AGS评分 | F/t值 | P值 |
|---|---|---|---|---|---|---|---|---|---|
| 性别 | 2.485 | 0.014 | < 1 | 91 | 89.49±9.31 | ||||
| 男 | 109 | 86.65±10.07 | 1~6 | 129 | 88.15±8.06 | ||||
| 女 | 191 | 89.32±8.24 | 7~12 | 31 | 86.64±9.58 | ||||
| 文化程度 | 2.454 | 0.088 | > 12 | 49 | 87.81±10.44 | ||||
| 初中或以下 | 135 | 88.03±8.37 | 参与照顾的原因 | 0.383 | 0.682 | ||||
| 高中或中专 | 75 | 90.25±10.34 | 不得已参与 | 8 | 90.50±4.44 | ||||
| 大专及以上 | 90 | 87.24±8.64 | 责任和义务 | 210 | 88.11±8.99 | ||||
| 工作状况 | 0.388 | 0.679 | 自愿且乐意 | 82 | 88.76±9.45 | ||||
| 在职 | 173 | 88.58±8.78 | 对患者病情知晓情况 | 0.614 | 0.606 | ||||
| 离职或无业 | 95 | 87.71±9.35 | 不了解 | 2 | 86.00±2.83 | ||||
| 退休 | 32 | 89.03±9.52 | 了解一些 | 70 | 87.19±8.55 | ||||
| 家庭人均月收入/元 | 0.169 | 0.917 | 大体了解 | 153 | 88.89±9.47 | ||||
| < 2000 | 65 | 88.34±8.24 | 完全了解 | 75 | 88.40±8.61 | ||||
| 2000~4000 | 133 | 88.72±9.50 | 患者性别 | 0.059 | 0.953 | ||||
| 4001~6000 | 99 | 87.87±8.97 | 男 | 223 | 88.33±9.37 | ||||
| > 6000 | 3 | 88.00±8.54 | 女 | 77 | 88.40±8.00 | ||||
| 性格自我评定 | 0.310 | 0.733 | 患者患病时长/月 | 11.126 | < 0.001 | ||||
| 内向型 | 93 | 87.80±9.50 | < 1 | 72 | 84.49±10.36 | ||||
| 外向型 | 149 | 88.73±8.61 | 1~6 | 129 | 88.39±7.27 | ||||
| 混合型 | 58 | 88.26±9.36 | 7~12 | 49 | 88.55±7.94 | ||||
| 婚姻状况 | 1.739 | 0.159 | > 12 | 50 | 93.62±9.53 | ||||
| 未婚 | 26 | 91.50±9.83 | 患者GCS评分 | 11.144 | < 0.001 | ||||
| 已婚 | 268 | 88.15±8.91 | 重度意识障碍 | 43 | 94.84±9.74 | ||||
| 离异 | 4 | 82.50±9.54 | 中度意识障碍 | 114 | 88.34±7.03 | ||||
| 丧偶 | 2 | 85.50±2.12 | 轻度意识障碍 | 22 | 88.55±7.53 | ||||
| 宗教信仰 | 0.662 | 0.508 | 清楚 | 121 | 86.02±9.62 | ||||
| 有 | 17 | 86.94±7.49 | 患者自理能力 | 13.350 | < 0.001 | ||||
| 无 | 283 | 88.43±9.11 | 重度依赖 | 188 | 89.42±8.69 | ||||
| 身体状况 | 1.171 | 0.324 | 中度依赖 | 86 | 88.42±6.92 | ||||
| 极差 | 4 | 83.75±9.36 | 轻度依赖 | 13 | 86.69±7.06 | ||||
| 不好 | 45 | 86.20±7.54 | 完全自理 | 13 | 74.08±14.81 | ||||
| 一般 | 180 | 88.80±9.37 | 患者因脑卒中住院次数 | 0.226 | 0.798 | ||||
| 好 | 64 | 89.06±8.30 | < 5 | 227 | 88.36±8.57 | ||||
| 非常好 | 7 | 86.71±13.77 | 5~10 | 66 | 88.56±9.67 | ||||
| 与患者的关系 | 10.190 | < 0.001 | > 10 | 7 | 86.14±16.46 | ||||
| 配偶 | 168 | 89.58±8.62 | 患者医保支付方式 | 22.867 | < 0.001 | ||||
| 子女 | 78 | 89.14±8.03 | 职工医保 | 139 | 86.73±9.42 | ||||
| 父母 | 31 | 86.32±7.56 | 居民医保 | 137 | 87.69±7.00 | ||||
| 兄弟姐妹 | 23 | 79.39±11.58 | 自费 | 14 | 101.21±4.82 | ||||
| 参与照顾时长/月 | 0.934 | 0.425 | 其他 | 10 | 101.90±7.61 |
Table 2
Total score of each variable and Bootstrap analysis of main caregivers of young and middle-aged patients with severe stroke (r)"
| 项目 | 评分 | AGS评分 | ZBI评分 | SSRS评分 | SCSQ评分 | ||
|---|---|---|---|---|---|---|---|
| 积极应对 | 消极应对 | ||||||
| AGS评分 | 88.35±9.02 | 1.000 | - | - | - | - | |
| ZBI评分 | 42.32±7.41 | 0.381a | 1.000 | - | - | - | |
| SSRS评分 | 41.52±5.43 | -0.436a | -0.252a | 1.000 | - | - | |
| SCSQ评分 | 积极应对 | 13.32±5.67 | -0.369a | -0.203a | 0.167a | 1.000 | |
| 消极应对 | 16.19±4.25 | 0.357a | 0.226a | -0.228a | -0.185a | 1.000 | |
Table 3
Path significance test and effect analysis among variables in the fitted model"
| 效应类型 | 路径 | 标准化效应值 | 95%CI | |
|---|---|---|---|---|
| 下限 | 上限 | |||
| 直接效应 | 照顾者负担→预期性悲伤 | 0.458 | 0.192 | 0.729 |
| 间接效应 | 照顾者负担→消极应对→预期性悲伤 | 0.060 | 0.012 | 0.111 |
| 间接效应 | 照顾者负担→积极应对→预期性悲伤 | 0.061 | 0.009 | 0.126 |
| 间接效应 | 照顾者负担→社会支持→预期性悲伤 | 0.113 | 0.025 | 0.232 |
| 总效应 | 照顾者负担→预期性悲伤 | 0.693 | 0.499 | 0.839 |
| [1] | «中国脑卒中防治报告2021»编写组. «中国脑卒中防治报告2021»概要[J]. 中国脑血管病杂志, 2023, 20(11): 783-793. |
| Report on Stroke Prevention and Treatment in China Writing Group. Brief report on stroke prevention and treatment in China, 2021[J]. Chin J Cerebrov Dis, 2023, 20(11): 783-793. | |
| [2] | 周丹, 唐维红. 脑卒中患者年龄变化趋势及中青年脑卒中患者危险因素分析[J]. 检验医学与临床, 2019, 16(2): 211-213. |
| ZHOU D, TANG W H. The trends of age change in stroke patients and risk factors of young and middle-aged stroke patients[J]. Lab Med Clin, 2019, 16(2): 211-213. | |
| [3] | PUTAALA J. Ischemic stroke in young adults[J]. Continuum (Min-neap Minn), 2020, 26(2): 386-414. |
| [4] |
熊健, 郑国华. 脑卒中患者执行功能的研究进展[J]. 中国康复理论与实践, 2020, 26(7): 797-801.
doi: 10.3969/j.issn.1006-9771.2020.07.012 |
| XIONG J, ZHENG G H. Advance in executive function for post-stroke patients (review)[J]. Chin J Rehabil Theory Pract, 2020, 26(7): 797-801. | |
| [5] |
COELHO A, DE BRITO M, BARBOSA A. Caregiver anticipatory grief: phenomenology, assessment and clinical interventions[J]. Curr Opin Support Palliat Care, 2018, 12(1): 52-57.
doi: 10.1097/SPC.0000000000000321 |
| [6] | 于文华, 陆宇晗, 路潜, 等. 癌症患者主要照顾者预期性悲伤的研究进展[J]. 中华护理杂志, 2018, 53(6): 730-735. |
| YU W H, LU Y H, LU Q, et al. Research progress of anticipatory grief in primary caregivers of cancer patients[J]. Chin J Nurs, 2018, 53(6): 730-735. | |
| [7] | 王亚菲, 高振清, 柳云, 等. 首发脑卒中患者亲属照顾者预期性悲伤现状及影响因素分析[J]. 中国实用护理杂志, 2023, 39(3): 215-221. |
| WANG Y F, GAO Z Q, LIU Y, et al. Current status and influencing factors of anticipatory grief among family caregivers of first stroke patients[J]. Chin J Pract Nurs, 2019, 39(3): 215-221. | |
| [8] |
STROEBE M S, FOLKMAN S, HANSSON R O, et al. The prediction of bereavement outcome: Developmentofan integrative risk factor framework[J]. Soc Sci Med, 2006, 63(9): 2440-2451.
doi: 10.1016/j.socscimed.2006.06.012 |
| [9] | 吴明隆. 结构方程模型-AMOS的操作与应用[M]. 2版. 重庆: 重庆医科大学出版社, 2010: 4-5. |
| WU M L. Structural equation Model-AMOS operation and application[M]. 2nd ed. Chongqing: Chongqing Med Unive Press, 2010: 4-5. | |
| [10] | 中华医学会神经病学分会, 中华医学会神经病学分会脑血管病学组. 中国急性缺血性脑卒中诊治指南2018[J]. 中华神经科杂志, 2018, 51(9): 666-682. |
| Chinese Society of Neurology, Cerebrovascular Group, Chinese Society of Neurology. Chinese Guidelines for Diagnosis and Treatment of Acute Ischemic Stroke 2018[J]. Chin J Neurol, 2018, 51(9): 666-682. | |
| [11] | 中华医学会神经病学分会, 中华医学会神经病学分会脑血管病学组. 中国脑出血诊治指南(2019)[J]. 中华神经科杂志, 2019, 52(12): 994-1005. |
| Chinese Society of Neurology, Cerebrovascular Group, Chinese Society of Neurology. Chinese Guidelines for Diagnosis and Treatment of Cerebral Hemorrhage (2019)[J]. Chin J Neurol, 2019, 52(12): 994-1005. | |
| [12] | 中华医学会神经病学分会神经重症协作组. 神经重症监护病房建设中国专家共识[J]. 中华神经科杂志, 2014, 47(4): 269-273. |
| Chinese Association of Neurology, Chinese Association of Neurology. Consensus of Chinese Experts on the Construction of Neurological Intensive Care Unit[J]. Chin J Neurol, 2014, 47(4): 269-273. | |
| [13] |
THEUT S K, JORDAN L, ROSS L A, et al. Caregiver's anticipatory grief in dementia: a pilot study[J]. Int J Aging Hum Dev, 1991, 33(2): 113-118.
pmid: 1955206 |
| [14] | 辛大君. 晚期癌症患者及其家属悲伤反应研究[D]. 泸州: 西南医科大学, 2016. |
| XIN D J. A study on grief response of advanced cancer patients and their families[D]. Luzhou: Southwest Medical University, 2016. | |
| [15] | 王烈, 杨小湜, 侯哲, 等. 护理者负担量表中文版的应用与评价[J]. 中国公共卫生, 2006, 22(8): 970-972. |
| WANG L, YANG X S, HOU Z, et al. Application and evaluation of chinese version of Zarit Caregiver Burden interview[J]. Chin J Public Health, 2006, 22(8): 970-972. | |
| [16] |
LAZARUS R S, DELONGIS A, FOLKMAN S, et al. Stress and adaptational outcomes. The problem of confounded measures[J]. Am Psychol, 1985, 40(7): 770-785.
pmid: 4037513 |
| [17] | 解亚宁. 简易应付方式量表信度和效度的初步研究[J]. 中国临床心理学杂志, 1998(2): 114-115. |
| XIE Y N. A preliminary study on the reliability and validity of simple coping style Scale[J]. Chin J Clin Psychol, 1998(2): 114-115. | |
| [18] | 肖水源. «社会支持评定量表»的理论基础与研究应用[J]. 临床精神医学杂志, 1994, 4(2): 98-100. |
|
XIAO S Y. The theoretical basis and research application of Social Support Rating Scale[J]. J Clin Psych, 1994, 4(2): 98-100.
doi: 10.1002/(ISSN)1097-4679 |
|
| [19] | 候春慧. 首发青壮年脑卒中患者配偶照顾者准备度与成人依恋的相关性[J]. 国际医药卫生导报, 2021, 27(5): 748-751. |
| HOU C H. Relationship between spouse caregiver readiness and adult attachment in first-episode young adult stroke patients[J]. Int Med Health Guid News, 2021, 27(5): 748-751. | |
| [20] | 易梦思, 刘方, 张焱, 等. 中青年脑卒中患者疾病进展恐惧现状及影响因素[J]. 现代预防医学, 2022, 49(13) :2481-2485, 2491. |
| YI M S, LIU F, ZHANG Y, et al. Current situation and influencing factors of fear of disease progression in young and middle-aged stroke patients[J]. Mod Prev Med, 2019, 49(13): 2481-2485, 2491. | |
| [21] | 刘晶晶, 滕艳华. 晚期肺癌患者配偶恐惧疾病进展与预期性悲伤的相关性研究[J]. 护理管理杂志, 2021, 21(7): 511-514. |
| LIU J J, TENG Y H. Correlation between fear of disease progression and anticipatory grief in spouse patients with advanced lung cancer[J]. J Nurs Admin, 2019, 21(7): 511-514. | |
| [22] | LYONS K S, LEE C S. The theory of dyadic illness management[J]. J Family Nurs, 2018, 24(1) : 8-28. |
| [23] |
CARO C C, COSTA J D, DA CRUZ D M C. Burden and quality of life of family caregivers of stroke patients[J]. Occup Ther Health Care, 2018, 32(2): 154-171.
doi: 10.1080/07380577.2018.1449046 pmid: 29578827 |
| [24] | 李棪臻, 王海芳, 蔡建政, 等. 基于全周期需求的缺血性脑卒中偏瘫患者支持性照护信息平台的构建与应用研究[J]. 中国实用护理杂志, 2022, 38(9): 667-674. |
| LI Y Z, WANG H F, CAI J Z, et al. Construction and application of a supportive care information platform for ischemic stroke patients with hemiplegia based on full-cycle needs[J]. Chin J Pract Nurs, 2022, 38(9): 667-674. | |
| [25] | 王云龙, 刘玉敬, 于颖, 等. 二元应对在脑卒中偏瘫患者配偶照顾负担与负性情绪间的中介效应[J]. 护理学杂志, 2023, 38(24): 19-22, 36. |
| WANG Y L, LIU Y J, YU Y, et al. The mediating effect of dual coping between care burden and negative emotions in spouses of stroke patients with hemiplegia[J]. J Nurs Sci, 2023, 38(24): 19-22, 36. | |
| [26] |
岳洁, 刘艳, 李玉, 等. 国内脑卒中患者主要照顾者照顾负担水平及影响因素的系统评价[J]. 中国疗养医学, 2022, 31(8): 818-823.
doi: 10.13517/j.cnki.ccm.2022.08.008 |
|
YUE J, LIU Y, LI Y, et al. A systematic evaluation of caregiving burden level and influencing factors of primary caregivers of stroke patients in China[J]. Chin J Conval Med, 2022, 31(8): 818-823.
doi: 10.13517/j.cnki.ccm.2022.08.008 |
|
| [27] |
朱金凤, 蔡卫新, 陶子荣, 等. 中青年出血性脑卒中患者康复运动依从性现状及其影响因素分析[J]. 中华护理杂志, 2023, 58(5): 580-586.
doi: 10.3761/j.issn.0254-1769.2023.05.010 |
| ZHU J F, CAI W X, TAO Z R, et al. Analysis of rehabilitation exercise compliance and its infuencing factors in young and middle-aged patientswith hemorrhagic stroke[J]. Chin J Nurs, 2023, 58(5): 580-586. | |
| [28] | 梁津, 李鸿艳. 脑卒中主要照顾者身心健康研究进展[J]. 循证护理, 2021, 7(7): 906-910. |
| LIANG J, LI H Y. Research progress on physical and mental health of primary caregivers of stroke[J]. Chin Evid-Based Nurs, 2021, 7(7): 906-910. | |
| [29] |
AKOSILE C O, BANJO T O, OKOYE E C, et al. Informal caregiving burden and perceived social support in an acute stroke care facility[J]. Health Qual Life Outcomes, 2018, 16(1): 57-65.
doi: 10.1186/s12955-018-0885-z |
| [30] |
HAN Y, LIU Y, ZHANG X, et al. Chinese family care givers of stroke survivors: determinants of caregiving burden within the first six months[J]. Clin Nurs, 2017, 26(23/24): 4558-4566.
doi: 10.1111/jocn.2017.26.issue-23pt24 |
| [31] | 韩旭, 朱冉君, 臧舒婷, 等. 首发中青年脑卒中患者家属心理弹性及影响因素分析[J]. 临床心身疾病杂志, 2021, 27(4): 89-93. |
| HAN X, ZHU R J, ZANG S T, et al. Analysis of psychological resilience and its influencing factors in family members of young and middle-aged patients with first-episode stroke[J]. J Clin Psych Dis, 2021, 27(4): 89-93. |
| [1] | ZHU Lili, ZHAO Jiaxin, CHENG Xue, WANG Huijuan, CHEN Xiaoxia. Experiences and needs of stroke patients during rehabilitation: a qualitative meta-synthesis [J]. Chinese Journal of Rehabilitation Theory and Practice, 2026, 32(3): 286-293. |
| [2] | LIU Ping, ZHOU Nan, XUE Xiaojie, SHAO Weibo. Application of rehabilitation therapy techniques for post-stroke dysphagia: a bibliometric analysis [J]. Chinese Journal of Rehabilitation Theory and Practice, 2026, 32(3): 294-303. |
| [3] | YANG Ling, WANG Qinglei, WANG Jie, XU Wenjie, WANG Tong, GUO Chuan, QIAN Xue. Activation patterns and mechanism in the prefrontal cortex of post-stroke anxiety patients: a study using functional near-infrared spectroscopy [J]. Chinese Journal of Rehabilitation Theory and Practice, 2026, 32(3): 329-336. |
| [4] | YUE Yuan, ZHANG Tong, LIU Yuanmin, WANG Ya'nan. Effect of lower extremity exoskeleton robots on balance and walking function of patients with post-stroke cerebellar ataxia [J]. Chinese Journal of Rehabilitation Theory and Practice, 2026, 32(1): 23-29. |
| [5] | WU Cheng, ZHANG Yunfeng, WANG Weining, YU Kewei, ZHANG Yanzheng, SHEN Jiarong, WU Yi. Effect of elbow-wrist functional orthosis on plantar pressure and balance function in stroke patients with hemiplegia [J]. Chinese Journal of Rehabilitation Theory and Practice, 2026, 32(1): 30-39. |
| [6] | ZHANG Junfeng, CHEN Hao, DU Yuzheng, LI Chen, YU Tao, YANG Yuanqing. Non-pharmacological management for post-stroke spasticity from 2004 to 2024: a bibliometric analysis [J]. Chinese Journal of Rehabilitation Theory and Practice, 2026, 32(1): 45-58. |
| [7] | GAO Kaixiang, LU Haitao. Research in neurorehabilitation from 2015 to 2024: a bibliometric analysis [J]. Chinese Journal of Rehabilitation Theory and Practice, 2026, 32(1): 59-68. |
| [8] | WEI Jingyi, WANG Xiaojing, WANG Ran, WEI Chen, MA Sai, LIU Xihua. Effect of acupuncture synchronized speech training on post-stroke motor aphasia [J]. Chinese Journal of Rehabilitation Theory and Practice, 2025, 31(9): 1000-1008. |
| [9] | WANG Xiaojing, WEI Jingyi, WEI Chen, WANG Ran, MA Sai, LIU Xihua. Effect of synchronous acupuncture and articulation training on spastic dysarthria after stroke [J]. Chinese Journal of Rehabilitation Theory and Practice, 2025, 31(9): 1009-1016. |
| [10] | ZHOU Xinyue, YE Ruixue, MA Yaqi, XU Ying, CAO Longyao, WANG Yulong. Researches on central post-stroke pain: a bibliometric analysis [J]. Chinese Journal of Rehabilitation Theory and Practice, 2025, 31(9): 1038-1049. |
| [11] | GAO Yunhan, HOU Shanshan, WANG Xinyu, ZHU Chongtian. Effect of brain-computer interface on upper limb motor dysfunction in stroke patients based on functional near-infrared spectroscopy [J]. Chinese Journal of Rehabilitation Theory and Practice, 2025, 31(9): 1066-1073. |
| [12] | GAO Fei, LIU Lixu, HU Xueyan, WU Xiaoli, YANG Lingyu, YANG Yuqi, YE Changqing, DU Xiaoxia. Effect of unilateral or bilateral transcranial direct current stimulation on post-stroke dysphagia [J]. Chinese Journal of Rehabilitation Theory and Practice, 2025, 31(9): 993-999. |
| [13] | ZHANG Ziang, CHEN Jing, SHEN Mengru, GENG Zongxiao, HAN Xue, ZHAO Xu, XU Lei. Comparison of effect of different types of exercise on gait and balance for stroke patients [J]. Chinese Journal of Rehabilitation Theory and Practice, 2025, 31(8): 896-905. |
| [14] | WANG Xiaofeng, HU Mengqiao, WANG Yan, WEI Kun, XU Wenzhu, REN Dan, MA Ye. Effect of exoskeleton robot-assisted gait training on lower limb function after stroke and spinal cord injury: a systematic review [J]. Chinese Journal of Rehabilitation Theory and Practice, 2025, 31(8): 914-921. |
| [15] | ZHANG Zihan, GUAN Jinzhi, HUANG Xing, ZHOU Li, ZHANG Yaxuan, ZHANG Mengyuan, CHANG Jingling. Characteristics of time-domain and time-frequency of Chinese word-picture matching task-related electroencephalogram in patients with post-stroke aphasia [J]. Chinese Journal of Rehabilitation Theory and Practice, 2025, 31(8): 947-957. |
| Viewed | ||||||
|
Full text |
|
|||||
|
Abstract |
|
|||||
|
||