CJRTP

Chinese Journal of Rehabilitation Theory and Practice >

2020 , Vol. 26 >Issue 5: 534 - 538

DOI: https://doi.org/10.3969/j.issn.1006-9771.2020.05.008

Unmet Needs and Services of Nursing Care for Adults with Extremely Severe and Severe Intellectual Disabilities Using Structural Equation Analysis

  • Jia-ni CHEN ,
  • An-qiao LI ,
  • Lun LI ,
  • Zhuo-ying QIU ,
  • Hong-wei SUN ,
  • Bao TIAN ,
  • Zhao-hui SHEN ,
  • Xin LI ,
  • Di CHEN ,
  • Ting ZHU ,
  • Hong-zhuo MA ,
  • Hong-mei TIAN ,
  • Zi-wei CHENG
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  • 1. Research Institute of Rehabilitation Information, China Rehabilitation Research Centre, Beijing 100068, China
    2. Research Institute of Rehabilitation Information, China Rehabilitation Sciences Institute, Beijing 100068, China
    3. School of Psychology, Capital Normal University, Beijing 100037, China
    4. WHO Collaborating Center for China, Family of International Classifications, Beijing 100068, China
    5. China Key Laboratory of Classification, Evaluation and Rehabilita‐ tion (Sport) of Intellectual and Development Disability/School of Physical Education (Main Campus), Zhengzhou Uni‐ versity, Zhengzhou, Henan 450001, China
    6. Shenzhen Disabled Persons' Federation, Shenzhen, Guangdong 518008, China
    7. China Academy of ICF/Weifang Medical University, Weifang, Shandong 261053, China
    8. Shenzhen Longgang Special Education School, Shenzhen, Guangdong 518100, China

Received date: 2020-04-30

  Online published: 2020-05-29

Supported by

National Special Fund Projects of Basic Research of Public Benefits for Institutes at Central Governmental Level (Leading Project of Major Scientific Research)(2017CZ-7);National Special Fund Projects of Basic Research of Public Benefits for Institutes at Central Governmental Level (Leading Project of Major Scientific Research)(2018CZ-4)

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Abstract

Objective To explore the characteristics and related factors of unmet needs of nursing care and service for adults with extremely severe and severe intellectual disabilities.Methods A total of 127 547 adults with extremely severe and severe intellectual disabilities were sampled. Descriptive statistics and multiple response analysis were conducted, and a structural equation model of unmet needs of nursing care and received the services was developed. Results A total of 26 038 adults with extremely severe and severe intellectual disabilities reported unmet needs of rehabilitation, including nursing care (52.50%), medicine (36.90%), assistive device (20.90%), functional training (19.70%) and surgery (0.80%) respectively. A total of 11 640 adults with extremely severe and severe intellectual disabilities reported received rehabilitation services, including nursing care (49.90%), medicine (36.80%), functional training (19.10%), assistive device (14.10%) and surgery (1.00%) respectively. The structural equation model showed that received nursing care service (main effect = 0.646) and received rehabilitation services (included nursing care) (main effect = 0.014), age (main effect = 0.031), household registration (main effect = 0.015) and educational level (main effect = -0.158) had effects on unmet needs of nursing care (P < 0.001). Conclusion Adults with extremely severe and severe intellectual disabilities reported unmet needs mainly involved in field of nursing care, and their rehabilitation services mapped to their main needs. It proposed to develop rehabilitation services tailored to their rehabilitation experience, age, socioeconomic status, functional conditions and characteristic of unmet needs, to develop accessible services items and individualized nursing care programs, and to expand the nursing care service supply and coverage of nursing care.

Key words： intellectual disabilities; nursing care; unmet needs of rehabilitation; services of rehabilitation

Cite this article

Jia-ni CHEN , An-qiao LI , Lun LI , Zhuo-ying QIU , Hong-wei SUN , Bao TIAN , Zhao-hui SHEN , Xin LI , Di CHEN , Ting ZHU , Hong-zhuo MA , Hong-mei TIAN , Zi-wei CHENG . Unmet Needs and Services of Nursing Care for Adults with Extremely Severe and Severe Intellectual Disabilities Using Structural Equation Analysis[J]. Chinese Journal of Rehabilitation Theory and Practice, 2020 , 26(5) : 534 -538 . DOI: 10.3969/j.issn.1006-9771.2020.05.008

References

[1] 李安巧, 邱卓英, 吴弦光, 等. 康复2030:国际康复发展状况与行动呼吁[J]. 中国康复理论与实践, 2017, 23(4):379.
[2] 李红, 路娟, 朱婷, 等. 国际社区康复理念及其在中国社区康复中的应用[J]. 中国康复理论与实践, 2014, 20(9):805-807.
[3] 李欣, 邱卓英, 杨剑, 等. 康复2030:扩大康复规模以满足日益增长的康复需求[J]. 中国康复理论与实践, 2017, 23(4):380-384.
[4] 邱卓英, 郭键勋, 李伦, 等. 世界卫生组织康复指南《健康服务体系中的康复》:背景、理论架构与方法、主要内容和实施[J]. 中国康复理论与实践, 2020, 26(1):16-20.
[5] 邱卓英, 郭键勋, 杨剑, 等. 康复2030:促进实现《联合国2030年可持续发展议程》相关目标[J]. 中国康复理论与实践, 2017, 23(4):373-378.
[6] 邱卓英, 李伦, 陈迪, 等. 基于世界卫生组织国际健康分类家族康复指南研究:理论架构和方法体系[J]. 中国康复理论与实践, 2020, 26(2):125-135.
[7] 中共中央, 国务院. “健康中国2030”规划纲要[EB/OL]. ( 2016- 10- 25). http://www.gov.cn/zhengce/2016-10/25/content_5124174.htm
[8] 邹敏, 孙宏伟, 邱卓英, 等. 基于ICD-11和ICF的智力残疾术语、诊断和分类研究[J]. 中国康复理论与实践, 2019, 25(1):1-5.
[9] 李毓秋, 邱卓英, 邹敏. 6~18岁重度智力残疾儿童的智力与适应性行为评定和分级方法研究[J]. 中国康复理论与实践, 2019, 25(1):6-9.
[10] 梁兵, 马洪卓, 邱卓英, 等. 3~6岁脑性瘫痪、智力残疾、孤独症儿童活动和参与功能障碍比较[J]. 中国康复理论与实践, 2015, 21(9):993-995.
[11] 王胜男, 邱卓英, 孙宏伟, 等. 智力残疾人的职业康复:理论架构、方法与服务[J]. 中国康复理论与实践, 2019, 25(1):22-28.
[12] 王苗苗, 卢国华, 李安巧, 等. 智力残疾人的健康状况与健康服务研究[J]. 中国康复理论与实践, 2019, 25(1):15-21.
[13] 孙宏伟, 邹敏, 邱卓英, 等. 基于ICF的智力残疾个别化服务与支持方案设计研究[J]. 中国康复理论与实践, 2019, 25(1):10-14.
[14] 陶慧芬, 江传曾, 唐利娟. 中国特色残疾人康复事业发展道路探析[J]. 残疾人研究, 2018(2):21-29.
[15] 邱卓英, 李欣, 刘冯铂, 等. 基于ICF的智力残疾模式、测量方法及社会支持系统研究[J]. 中国康复理论与实践, 2016, 22(4):373-377.
[16] 邱卓英, 黎东晓, 李欣, 等. 当代智力残疾测量与统计方法和社会支持与服务体系研究[J]. 中国康复理论与实践, 2016, 22(4):383-388.
[17] 诸萍, 张蕾. 智力残疾人群服务需求研究[J]. 残疾人研究, 2013(2):66-71.
[18] 邱卓英, 李欣, 李沁燚, 等. 中国残疾人康复需求与发展研究[J]. 中国康复理论与实践, 2017, 23(8):869-874.
[19] 邱卓英, 郭键勋, 李伦. 健康服务体系中的康复[J]. 中国康复理论与实践, 2020, 26(1):1-14.
[20] 方国恩. 学习推广世卫组织康复指南发展中国康复医疗服务[J]. 中国康复理论与实践, 2020, 26(1):15.
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